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LEMTRADA is a prescription medicine used to treat adults with relapsing forms of multiple sclerosis (MS). Because of its risks, LEMTRADA is generally used in people who have tried 2 or more MS medicines that have not worked well enough. It is not known if LEMTRADA is safe and effective for use in children under 17 years of age.

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Learning About Post-Infusion Fatigue the Hard Way LEMTRADA patient blogger: Kimberly By Kimberly, Texas Gal, Born and Raised • September 17, 2018

Learning about post-infusion fatigue from relapsing MS treatment

Why is it so important to understand how to take care of yourself after your infusion? Well, let me explain, using my own personal experience. After my first LEMTRADA infusion, I was so happy to be done, and so ready to get home, that I didn’t really pay attention to any of the instructions my healthcare provider gave me, and oh boy did I pay for it.

When I returned for my second course of infusions one year later, you can bet I did things differently. When I left the infusion center this time, I knew what to expect, and I followed my healthcare provider’s instructions to a T!

Take a look at the steps (and missteps!) I followed to see why it’s so crucial that you ask questions and know what to expect post-treatment.

5 things Kimberly did wrong after her LEMTRADA treatment

  1. I forgot to take notes
    When my first treatment course was finished, I was tired. I couldn’t really concentrate on my healthcare provider’s post-infusion-care speech, and I didn’t take any notes. I just stared blankly and nodded along.
  2. I dove right into my routine 
    The moment I got home, I dove right back into my normal routine, happy that my treatment course was over.
  3. I over-celebrated
    I was ready to party, so I invited my friends and family over for an “I Rocked Infusion Week” shindig. I even planned the theme and shopped for food. 
  4. I pushed myself too hard
    On the day of the party, I helped with the preparations. When the guests arrived, they could tell I was a little off. But I didn’t want to be a party pooper, so I tried to keep going. Sure enough, halfway through I started to crash.
  5. I didn’t listen to my body
    I was wiped out. For the next few days, I lay in my bed, wishing I had paid closer attention to my healthcare provider’s instructions. I didn’t know it then, but what my body really needed was to rest and recover.

As you can see, that didn’t work out so well for me. So when it was time for my next treatment course, I remembered my mistakes and made sure I didn’t repeat them. 

3 things Kimberly did right after her second round of infusions

  1. I took notes
    This time I came prepared. I wrote down my healthcare provider’s instructions. I asked questions and made sure I understood the answers.
  2. I scheduled recovery time
    I didn’t try to do too much, too soon. My only plan was to stay home and recover from my infusion. When I felt fatigued, I rested.
  3. I listened to my body
    After a week or two, I started to feel as if I might be ready to get back to my normal routine. So I slowly eased back into it, making sure I listened to my body the whole time.

So please, learn from my mistakes! Listen to your healthcare provider. Ask questions. Take notes. And give your body the time it needs to recover after infusions. And you can still throw that party a little later, once you’re feeling up to it. You deserve it!

  • infusion
  • INFUSION PREP
  • post-infusion
  • year 2



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