Learning About Post-Infusion Fatigue the Hard Way By Kimberly, Texas Gal, Born and Raised • September 17, 2018
Why is it so important to understand how to take care of yourself after your infusion? Well, let me explain, using my own personal experience. After my first LEMTRADA infusion, I was so happy to be done, and so ready to get home, that I didn’t really pay attention to any of the instructions my healthcare provider gave me, and oh boy did I pay for it.
When I returned for my second course of infusions one year later, you can bet I did things differently. When I left the infusion center this time, I knew what to expect, and I followed my healthcare provider’s instructions to a T!
Take a look at the steps (and missteps!) I followed to see why it’s so crucial that you ask questions and know what to expect post-treatment.
- I forgot to take notes
When my first treatment course was finished, I was tired. I couldn’t really concentrate on my healthcare provider’s post-infusion-care speech, and I didn’t take any notes. I just stared blankly and nodded along.
- I dove right into my routine
The moment I got home, I dove right back into my normal routine, happy that my treatment course was over.
- I over-celebrated
I was ready to party, so I invited my friends and family over for an “I Rocked Infusion Week” shindig. I even planned the theme and shopped for food.
- I pushed myself too hard
On the day of the party, I helped with the preparations. When the guests arrived, they could tell I was a little off. But I didn’t want to be a party pooper, so I tried to keep going. Sure enough, halfway through I started to crash.
- I didn’t listen to my body
I was wiped out. For the next few days, I lay in my bed, wishing I had paid closer attention to my healthcare provider’s instructions. I didn’t know it then, but what my body really needed was to rest and recover.
As you can see, that didn’t work out so well for me. So when it was time for my next treatment course, I remembered my mistakes and made sure I didn’t repeat them.
- I took notes
This time I came prepared. I wrote down my healthcare provider’s instructions. I asked questions and made sure I understood the answers.
- I scheduled recovery time
I didn’t try to do too much, too soon. My only plan was to stay home and recover from my infusion. When I felt fatigued, I rested.
- I listened to my body
After a week or two, I started to feel as if I might be ready to get back to my normal routine. So I slowly eased back into it, making sure I listened to my body the whole time.
So please, learn from my mistakes! Listen to your healthcare provider. Ask questions. Take notes. And give your body the time it needs to recover after infusions. And you can still throw that party a little later, once you’re feeling up to it. You deserve it!
- INFUSION PREP
- year 2
The Balancing Act: Children and Treatment
By Kimberly, Texas Gal, Born and Raised, May 9, 2017
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My Infusion Experience — and Support Throughout!
By Kimberly, Texas Gal, Born and Raised, February 6, 2017
Immediately after deciding to start LEMTRADA, I got even more support from the comfort of my own home, where I received a phone
Attend a live event or watch one online to learn more about LEMTRADA.
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