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LEMTRADA is a prescription medicine used to treat adults with relapsing forms of multiple sclerosis (MS). Because of its risks, LEMTRADA is generally used in people who have tried 2 or more MS medicines that have not worked well enough. It is not known if LEMTRADA is safe and effective for use in children under 17 years of age.

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Ask a LEMTRADA Patient: Q&A with Katy LEMTRADA patient blogger: Katy By Katy, Wife, Writer, and Yoga Instructor • February 14, 2019

Ask a LEMTRADA Patient: Q&A with Katy: Relapsing MS Blog

Life with relapsing multiple sclerosis (RMS) is full of questions for all of us. What is that buzzing sensation? Why can’t I see out of my left eye completely? Will I ever be able to feel my thumb and index finger again?

Those questions will never come to an end. But we are each other’s greatest resources for information and support. Whenever I meet other individuals with relapsing MS, or when I am asked about my experience with LEMTRADA, I always try to preface my answers with “We all have our own unique experiences.” Then I do my best to speak as candidly and helpfully as possible.

Below are a few of the questions I hear most frequently about LEMTRADA and living with relapsing MS. I hope you find the answers valuable.

Q. I am nervous about LEMTRADA because of possible side effects. Is it worth the risk?

A. If you are considering LEMTRADA treatment, you should first find out about the potential side effects and discuss the risks and benefits with your healthcare provider. One of the potential side effects is thyroid disease, which I experienced after my first infusion. Through the monitoring program, my condition was detected early and my healthcare provider had a plan in place to treat it. My thyroid condition is being managed, and I am still glad that we chose LEMTRADA.

Q. How long will it take for LEMTRADA to fix my symptoms?

A. As with any disease-modifying therapy, LEMTRADA is not indicated to correct a current flare-up. Often, a healthcare provider will prescribe intravenous steroids to help ease inflammation associated with flare-ups and new symptoms. LEMTRADA is prescribed to treat relapsing MS. In studies, it has been shown to reduce relapses and slow disability progression. You can read about those studies here.

Q. Will I ever be able to get my life back?

A. A relapsing MS diagnosis changes everything about our daily realities. But different doesn’t have to be discouraging.

Relapsing MS has gifted me with a sense of perspective and appreciation for life that I may have never known without the diagnosis of a chronic disease. Yes, some days can still be frustrating and even frightening if I let myself think too much about all of the “what-ifs.” But a conversation with my husband or my sister or a close friend can usually help me get back on track after a few minutes or hours of lamentation.

Katy teaches yoga while living with relapsing multiple sclerosis.

If you have any questions about your relapsing MS and if LEMTRADA may be able to help you, you should ask your healthcare provider. I’ve found that the MS One to One® Nurses are really knowledgeable about LEMTRADA and a resource that you can tap into anytime. Call them at 1-855-676-6326.

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