LEMTRADA is a prescription medicine used to treat adults with relapsing forms of multiple sclerosis (MS). Because of its risks, LEMTRADA is generally used in people who have tried 2 or more MS medicines that have not worked well enough. It is not known if LEMTRADA is safe and effective for use in children under 17 years of age.

Do not receive LEMTRADA if you are infected with human immunodeficiency virus (HIV).

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Get in The "Driver's Seat" and Own Your Relapsing MS Story LEMTRADA® patient blogger: Katy By Katy, Wife, Writer, and Yoga Instructor • November 21, 2018

LEMTRADA Ambassador, Katy, and her husband

Whether you consider yourself to be an assertive person, or you have a more laid-back personality, if you’ve been diagnosed with multiple sclerosis, getting in the so-called “driver’s seat” is more important than ever.

For many of us, speaking up for ourselves was critical to getting the initial diagnosis of relapsing MS. Because of the often-invisible nature of this disease, your family, friends, and physicians may not have known something was wrong until we told them.

Don’t get me wrong—your healthcare providers are certainly the experts where your disease is concerned. But for them to fully understand what is happening in your body, or whether or not your medication is working well enough, they need your feedback.

And while nobody likes to be a complainer, if you are seeing two of everything, or if your hand suddenly feels like a block of cement, you need to speak up and let someone know, or you may find yourself suffering longer than necessary.

If you’re hesitant to communicate your needs, you’ll need to find a way to get comfortable talking about it. Some techniques you may want to consider are: 

  • using a symptom tracker
  • keeping a daily journal 
  • creating a video blog

Katy writing in her relapsing MS symptom journal

Discussing what you are feeling, and when you are feeling it, helps your doctor to better understand your condition. And when he or she knows what’s happening, they can offer help. There may not be a miracle remedy to relieve every symptom, but there could be options to help make symptoms such as relentless itching, neuropathic pain, or blind spots in your field of vision a little more bearable.

Since being diagnosed with relapsing MS, speaking up for myself has come naturally to me. As a sometimes impatient, solutions-oriented person, I want to find and apply answers as quickly as possible. This approach has served me well in terms of efficiently addressing challenges when they present themselves.

Stop listening to that voice in your head that says to stay silent. Summon up the courage to take the best care of yourself and speak up instead. Your MS will be with you for a lifetime.

How have you advocated for yourself in the past? Share your experiences.

  • DIAGNOSIS
  • goals
  • healthcare provider
  • THE DECISION



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