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LEMTRADA is a prescription medicine used to treat adults with relapsing forms of multiple sclerosis (MS). Because of its risks, LEMTRADA is generally used in people who have tried 2 or more MS medicines that have not worked well enough. It is not known if LEMTRADA is safe and effective for use in children under 17 years of age.

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Sunday Afternoons LEMTRADA patient blogger: Donnie By Donnie, Father, Husband, Project Leader, Former Athlete • November 7, 2017

Relapsing multiple sclerosis and golfing

On most Sundays in the late afternoon you can find me doing one of two things. I am either watching golf or NASCAR. Not everyone likes watching either one, but I do. And while I will never be a NASCAR driver, I do love to play golf.

Fifteen years ago instead of watching golf on Sundays, I was playing it. Whether it was at the local course or the driving range, I always had a club in my hand. Sometimes I would just go to the practice green at the course to practice my short game. All golfers have heard the saying, “You drive for show and putt for dough.”

Being diagnosed with relapsing MS at the age of 30 was a life changing experience for me. As my relapsing MS gradually began to get worse, I lost the ability to do a lot of the things that I loved, like playing golf, tennis, and softball. My relapsing MS eventually got to the point where I couldn’t do any of those things. The heat intolerance and poor balance were not a good combination for anything athletic. I won’t lie. I was angry that I could no longer do some of the things that have brought me so much joy.

With that being said, I have something very special in common with some of the other bloggers. I have never asked “Why me?” I have always asked, “Why not me?” What makes me so special? And I believe a large part of what makes me special is my faith and my family, which have both been essential in helping me live with my relapsing MS. I have no idea how I came to have relapsing MS, but believe that you will never be given more than you can handle. It is not easy living with relapsing MS, but each day I pray for the strength to help me meet whatever challenge is thrown my way.

I recently read this quote by Josh Shipp: “You either get bitter or you get better. It’s that simple. You can take what’s been dealt to you and allow it to make you a better person, or you allow it to tear you down. The choice does not belong to fate. It belongs to you.”

That quote pretty much sums up how I live with my relapsing MS. I approach each day with a positive attitude. I work on the things that I can control and don’t pay too much attention to things that are out of my control. I would encourage any person reading this to do the same thing. Relapsing MS does not define me. I define myself.

How do you define yourself? Values? Family? Faith? I’d love to hear, so feel free to tell me in the comment section below!

  • DIAGNOSIS
  • exercise
  • hope
  • LIVING WITH RELAPSING MS



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  • FAMILY
  • PATIENT
  • YEAR 1
  • DIAGNOSIS
  • THE DECISION
  • SUPPORT
  • TREATMENT
  • NURSE
  • CARE PARTNER
  • LIVING WITH RELAPSING MS
  • CLINICAL TRIALS
  • INFUSION PREP
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  • CHILDREN
  • NEUROLOGIST
  • EDUCATION
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  • RESOURCES
  • INFUSION
  • POST-INFUSION
  • MONITORING
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  • COMMUNITY
  • FRIENDS
  • YEAR 2
  • GOALS
  • CAREER
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  • VOLUNTEER
  • EVENTS
  • HOPE
  • NUTRITION
  • HOLIDAYS
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  • RELAPSING MS
  • DECISION-MAKING
  • COMMUNICATION
  • SELF-ADVOCACY
  • MAKING A SWITCH
  • DECISION