The Second Round of LEMTRADA Infusions By Katy, Wife, Writer, and Yoga Instructor • August 9, 2018
With the LEMTRADA infusion I was a little nervous at the beginning. During my first round of therapy I had a few of the possible side effects that my neurologist mentioned. My skin itched, my gums were sensitive, and I had a tough time sleeping.
It was no walk in the park, but I was able to get through it thanks to the guidance of my physician, the infusion nurses, and the loving support of my family.
I knew I would have to complete monthly monitoring, including blood and urine tests, until 4 years or longer after my last treatment, to help detect potential serious side effects. Monitoring also includes annual skin exams and symptom self-checks.
I learned a few very valuable lessons during that first experience with LEMTRADA, and I remembered to keep the following in mind when I went in for round two, one year later:
Armed with my experience and wisdom, I launched into my second round of LEMTRADA with confidence. While the first year’s dosing schedule was five consecutive days of infusions, the second year was shorter, with three consecutive days.
During my LEMTRADA infusions, I set aside my to-do lists and made taking care of myself my main priority.
So if you can, ignore your inbox. Silence your cellphone. And binge-watch the shows you haven’t had time to view. Take bubble baths. Eat pasta. Have dessert. And be kind to yourself.
I found that these self-imposed commands were easier to follow the second time around. I was getting better at letting go of my type-A tendencies toward needing to control circumstances and expecting perfection. And my body had an easier time relaxing, as well.
Like anything else in life, the reality of a situation is better when you know what to expect and you’ve had a chance to practice once before. So if you’re looking forward to round two of treatment yourself, you’ve got this. Do you have any advice for going into your second course of treatment with LEMTRADA?
- side effects
- year 2
Traveling with Relapsing MS
By Katy, Wife, Writer, and Yoga Instructor, July 19, 2018
Unfortunately, we can’t leave relapsing MS at home when we go on vacation but there are things we can do to prepare
The Role of Love When Living with Relapsing Multiple Sclerosis
By Katy, Wife, Writer, and Yoga Instructor, September 1, 2017
My husband, Joey, knew I had relapsing multiple sclerosis long before we started dating. We had been friends for almost a year
Attend a live event or watch one online to learn more about LEMTRADA.
More From this Blogger
A Moment to Remember: Choosing LEMTRADA
January 9, 2017
When I was diagnosed with relapsing multiple sclerosis at 19 years old, I was terrified, to say the ...
My Infusion Encounters
December 14, 2016
Over the years I had grown accustomed to the injection drill. Premedicate by taking an anti-inflamma ...
The Power of Positivity: Living with Relapsing MS
December 12, 2016
When I was diagnosed with relapsing multiple sclerosis in 2001, my first instinct was to panic. My m ...