menu

LEMTRADA is a prescription medicine used to treat adults with relapsing forms of multiple sclerosis (MS). Because of its risks, LEMTRADA is generally used in people who have tried 2 or more MS medicines that have not worked well enough. It is not known if LEMTRADA is safe and effective for use in children under 17 years of age.

View IMPORTANT SAFETY INFORMATION

Share, Send, or Save

The Second Round of LEMTRADA Infusions LEMTRADA patient blogger: Katy By Katy, Wife, Writer, and Yoga Instructor • August 9, 2018

Relapsing MS patient, Katy, enjoying a bubble bath

With the LEMTRADA infusion I was a little nervous at the beginning. During my first round of therapy I had a few of the possible side effects that my neurologist mentioned. My skin itched, my gums were sensitive, and I had a tough time sleeping.  

It was no walk in the park, but I was able to get through it thanks to the guidance of my physician, the infusion nurses, and the loving support of my family.

I knew I would have to complete monthly monitoring, including blood and urine tests, until 4 years or longer after my last treatment, to help detect potential serious side effects. Monitoring also includes annual skin exams and symptom self-checks.

I learned a few very valuable lessons during that first experience with LEMTRADA, and I remembered to keep the following in mind when I went in for round two, one year later:

Armed with my experience and wisdom, I launched into my second round of LEMTRADA with confidence. While the first year’s dosing schedule was five consecutive days of infusions, the second year was shorter, with three consecutive days.

During my LEMTRADA infusions, I set aside my to-do lists and made taking care of myself my main priority.

So if you can, ignore your inbox. Silence your cellphone. And binge-watch the shows you haven’t had time to view. Take bubble baths. Eat pasta. Have dessert. And be kind to yourself.

I found that these self-imposed commands were easier to follow the second time around. I was getting better at letting go of my type-A tendencies toward needing to control circumstances and expecting perfection. And my body had an easier time relaxing, as well.

Like anything else in life, the reality of a situation is better when you know what to expect and you’ve had a chance to practice once before. So if you’re looking forward to round two of treatment yourself, you’ve got this. Do you have any advice for going into your second course of treatment with LEMTRADA?

  • nutrition
  • post-infusion
  • side effects
  • year 2



Related Posts

MY LIFE

Traveling with Relapsing MS

By Katy, Wife, Writer, and Yoga Instructor, July 19, 2018

Unfortunately, we can’t leave relapsing MS at home when we go on vacation but there are things we can do to prepare

MY LIFE

The Role of Love When Living with Relapsing Multiple Sclerosis

By Katy, Wife, Writer, and Yoga Instructor, September 1, 2017

My husband, Joey, knew I had relapsing multiple sclerosis long before we started dating. We had been friends for almost a year

0 Comments

Add a comment

All fields required




1000 characters remaining

By clicking the Submit button you are agreeing to our Terms of Use. All submissions must be approved by Sanofi Genzyme before they will be posted.

The information on this page is owned and controlled by Sanofi Genzyme. All submissions will be reviewed and must be approved by Sanofi Genzyme before being posted. Comments that do not directly relate to the topic, potentially violate US FDA regulations, are factually inaccurate or misleading, or are spam, inappropriate, defamatory or use profanity will not be posted.

Please keep your comments respectful and appropriate, and do not reference any product names or product information. We will not post comments that include drug names or descriptions. Please note that Sanofi Genzyme may choose not to post, or may remove, a comment for any reason at any time. Comments on the page from members of the public do not necessarily reflect the views of Sanofi Genzyme, and Sanofi Genzyme does not endorse any content added by other users.

We are required to record and handle the submitted comments in a specific manner to monitor the safety of our product. If you have experienced a side effect or have a complaint specific to a Sanofi Genzyme product, please contact your healthcare provider. In addition, we encourage you to report the event to us by calling Sanofi Genzyme at 800-745-4447, where someone is available to speak with you.

The information on this page is intended for U.S. residents only and is not meant to substitute for the advice provided by a medical professional. Always consult a physician if you have health concerns.

Blog Terms of Use

LEMTRADA Events

Attend a live event or watch one online to learn more about LEMTRADA.


More From this Blogger

  • A Moment to Remember: Choosing LEMTRADA

    January 9, 2017

    When I was diagnosed with relapsing multiple sclerosis at 19 years old, I was terrified, to say the ...

  • My Infusion Encounters

    December 14, 2016

    Over the years I had grown accustomed to the injection drill. Premedicate by taking an anti-inflamma ...

  • The Power of Positivity: Living with Relapsing MS

    December 12, 2016

    When I was diagnosed with relapsing multiple sclerosis in 2001, my first instinct was to panic. My m ...


Tags

Show Less
  • FAMILY
  • PATIENT
  • YEAR 1
  • DIAGNOSIS
  • THE DECISION
  • SUPPORT
  • TREATMENT
  • NURSE
  • CARE PARTNER
  • LIVING WITH RELAPSING MS
  • CLINICAL TRIALS
  • INFUSION PREP
  • SYMPTOMS
  • HOBBIES
  • MS ONE TO ONE
  • CHILDREN
  • NEUROLOGIST
  • EDUCATION
  • EDUCATION
  • DISABILITY PROGRESSION
  • HEALTHCARE PROVIDER
  • EXERCISE
  • TIPS
  • RELATIONSHIPS
  • SIDE EFFECTS
  • RELAPSE
  • RESOURCES
  • INFUSION
  • POST-INFUSION
  • MONITORING
  • HOPE
  • COMMUNITY
  • FRIENDS
  • YEAR 2
  • GOALS
  • CAREER
  • FINANCE
  • VOLUNTEER
  • EVENTS
  • HOPE
  • NUTRITION
  • HOLIDAYS
  • RESULTS
  • RELAPSING MS
  • DECISION-MAKING
  • COMMUNICATION
  • SELF-ADVOCACY
  • MAKING A SWITCH
  • DECISION