The Nuts and Bolts of Making a Switch in Your Relapsing MS Treatment By MS One to One • April 20, 2018
For those of you who don’t know me, I’m Denise, an MS One to One Nurse. Today I’m writing this post to give you some information to consider in terms of treatment decisions, and to let you know how MS One to One can be a helpful resource for you.
Now, making the decision to move forward with a new RMS treatment usually comes during a challenging time and after much discussion with your neurologist. Navigating the abundance of information related to your therapy may feel overwhelming, and you may have more questions than answers. However, taking the time to understand the “nuts and bolts” of making a switch to a different medication can help you move forward with confidence.
I listed some tips below to help you navigate your journey with any relapsing MS treatment that's new for you. The key is to be empowered to ask the right questions and seek the best advice.
- Keep your appointments with your healthcare team. If you haven’t seen your neurologist in over 6 months, call to find out when he or she wants to see you again.
- Bring someone with you to your appointment. A friend or loved one can be helpful by writing down answers to your questions and reminding you of the questions you wanted answered.
- Think about your goals—and remember that no goal is too big or too small!
- Be sure to understand the short-and long-term commitment of switching medications. Ask yourself, “Is monthly lab work required?” or “Will I need to take time off work to receive the treatment?” or “What is the dosing schedule like?” Be sure to keep these kinds of questions in mind when you’re talking to your healthcare team about treatments—so you can get a better idea of what to expect.
- Have a conversation with an MS One to One Nurse. Your nurse can provide you with invaluable information, such as:
- Where you can find in-depth information about your new RMS treatment and hear from patients with treatment experience—whether it be online or at live events.
- Financial realities of switching and any financial programs that can assist with co-pays and other out-of-pocket costs.
- Schedule a follow-up appointment with your neurologist, so he or she can assess your progress on your medication.
- Keep your doctor up to date about how you’re feeling. There’s nothing too small to report.
- Balance patience with hopeful anticipation. Listen to your body, give it what it needs, and remain steadfast in your commitment to your health and well-being.
Preparing to switch your RMS therapy, such as to LEMTRADA, involves many moving pieces, and there is support for you, your healthcare team, and all of your other supporters along the way. As you learn and adjust to a new regimen, continue to ask questions and reach out for help. Rest assured that MS One to One is there to help you navigate your journey. You are not alone. There is help available.
- MS ONE TO ONE
- THE DECISION
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