The Play-by-Play: My Infusion Adventure By Donnie, Father, Husband, Project Leader, Former Athlete • April 27, 2017
I started my treatment adventure the very day I was approved to start LEMTRADA. The scheduling process went pretty quickly and I learned that there was only one site in Kentucky that had been certified through the REMS program to infuse LEMTRADA. The good news was that it was only 25 miles from my home.
Before I knew it, the big day was here! It was time for my first treatment. I was prescribed medications that I would need to take prior to the infusions to help with potential infusion side effects.
When we arrived at the hospital, I felt like a rock star. Like I mentioned once before, I was the first person in Kentucky to receive LEMTRADA. So even though they were trained, the process was new for the nurses at the hospital too, and I was placed in a cubicle right across from the nurses’ station.
On a side note, as you may have already noticed from my past posts, my wife and I are pretty inseparable. She is always by my side and we have a very unique story. We have known each other since the 4th grade. We live in a small town, so we spent our school years going to the same schools. We were friends through all of those years, but nothing else. After high school we lost touch, but we ran into each other 5 years after our graduation and we went on a date just a week after that chance meeting. Since then, we’ve been together for over 23 years!
My wife is the most kind-hearted and supportive person I know, so of course there was no question she’d be there when I started treatment. She drove me to the infusion site each day and stayed with me during my infusions. If you’re starting LEMTRADA, I think it’s a great idea to bring a loved one or Care Partner along—not just for support, but also to pass the time.
Now, I want to tell you a little about my personal experience receiving LEMTRADA.
On the first day of the infusions I was a little anxious, as you might expect. Being the first person in my state to get LEMTRADA was both exciting and a little nerve-racking. Every patient is different, but all things considered, I thought my infusion days went very smoothly. The most common side effects of LEMTRADA include headache, fever, and rash, but my only side effect during my infusions was fatigue. When I woke up on the day after my last infusion, I was tired and achy, so I spent all day and all night resting in bed. When I woke up the next day, the aches and fatigue had disappeared and I have not had any noticeable side effects since.
My experience with the second round of infusions also went very smoothly. I did experience the same fatigue and aches after the infusions, but they subsided quickly.
One thing that I will always remember is the importance of telling your doctor about any side effects you have right away—whether it’s with LEMTRADA or any medication.
So there you have it—that’s my infusion experience. And my hope is that one day you have a positive treatment experience to share as well!
- CARE PARTNER
- side effects
- YEAR 1
- year 2
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Attend a live event or watch one online to learn more about LEMTRADA.
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