menu

LEMTRADA is a prescription medicine used to treat adults with relapsing forms of multiple sclerosis (MS). Because of its risks, LEMTRADA is generally used in people who have tried 2 or more MS medicines that have not worked well enough. It is not known if LEMTRADA is safe and effective for use in children under 17 years of age.

View IMPORTANT SAFETY INFORMATION

Share, Send, or Save

The Play-by-Play: My Infusion Adventure LEMTRADA patient blogger: Donnie By Donnie, Father, Husband, Project Leader, Former Athlete • April 27, 2017

NA

I started my treatment adventure the very day I was approved to start LEMTRADA. The scheduling process went pretty quickly and I learned that there was only one site in Kentucky that had been certified through the REMS program to infuse LEMTRADA. The good news was that it was only 25 miles from my home.

Before I knew it, the big day was here! It was time for my first treatment. I was prescribed medications that I would need to take prior to the infusions to help with potential infusion side effects.

When we arrived at the hospital, I felt like a rock star. Like I mentioned once before, I was the first person in Kentucky to receive LEMTRADA. So even though they were trained, the process was new for the nurses at the hospital too, and I was placed in a cubicle right across from the nurses’ station.

On a side note, as you may have already noticed from my past posts, my wife and I are pretty inseparable. She is always by my side and we have a very unique story. We have known each other since the 4th grade. We live in a small town, so we spent our school years going to the same schools. We were friends through all of those years, but nothing else. After high school we lost touch, but we ran into each other 5 years after our graduation and we went on a date just a week after that chance meeting. Since then, we’ve been together for over 23 years!

My wife is the most kind-hearted and supportive person I know, so of course there was no question she’d be there when I started treatment. She drove me to the infusion site each day and stayed with me during my infusions. If you’re starting LEMTRADA, I think it’s a great idea to bring a loved one or Care Partner along—not just for support, but also to pass the time.

Now, I want to tell you a little about my personal experience receiving LEMTRADA.

On the first day of the infusions I was a little anxious, as you might expect. Being the first person in my state to get LEMTRADA was both exciting and a little nerve-racking. Every patient is different, but all things considered, I thought my infusion days went very smoothly. The most common side effects of LEMTRADA include headache, fever, and rash, but my only side effect during my infusions was fatigue. When I woke up on the day after my last infusion, I was tired and achy, so I spent all day and all night resting in bed. When I woke up the next day, the aches and fatigue had disappeared and I have not had any noticeable side effects since.

My experience with the second round of infusions also went very smoothly. I did experience the same fatigue and aches after the infusions, but they subsided quickly.

One thing that I will always remember is the importance of telling your doctor about any side effects you have right away—whether it’s with LEMTRADA or any medication.

So there you have it—that’s my infusion experience. And my hope is that one day you have a positive treatment experience to share as well!

  • CARE PARTNER
  • infusion
  • monitoring
  • NURSE
  • PATIENT
  • side effects
  • tips
  • YEAR 1
  • year 2



Related Posts

MY EXPERIENCE

Planning For Chair Time: Tips from an MS One to One Nurse

By MS One to One, April 20, 2017

Hi there, I’m Marcia and I’m an MS One to One Nurse. Over the years I’ve found that many of the relapsing MS patients I speak to

MY EXPERIENCE

My Experience with Side Effects

By Rachel, Wife, Mother, Domestic Engineer, April 6, 2017

*Insider advice: Keep a journal of some sort to document your entire infusion experience. It’s a great way to keep track

0 Comments

Add a comment

All fields required




1000 characters remaining

By clicking the Submit button you are agreeing to our Terms of Use. All submissions must be approved by Sanofi Genzyme before they will be posted.

The information on this page is owned and controlled by Sanofi Genzyme. All submissions will be reviewed and must be approved by Sanofi Genzyme before being posted. Comments that do not directly relate to the topic, potentially violate US FDA regulations, are factually inaccurate or misleading, or are spam, inappropriate, defamatory or use profanity will not be posted.

Please keep your comments respectful and appropriate, and do not reference any product names or product information. We will not post comments that include drug names or descriptions. Please note that Sanofi Genzyme may choose not to post, or may remove, a comment for any reason at any time. Comments on the page from members of the public do not necessarily reflect the views of Sanofi Genzyme, and Sanofi Genzyme does not endorse any content added by other users.

We are required to record and handle the submitted comments in a specific manner to monitor the safety of our product. If you have experienced a side effect or have a complaint specific to a Sanofi Genzyme product, please contact your healthcare provider. In addition, we encourage you to report the event to us by calling Sanofi Genzyme at 800-745-4447, where someone is available to speak with you.

The information on this page is intended for U.S. residents only and is not meant to substitute for the advice provided by a medical professional. Always consult a physician if you have health concerns.

Blog Terms of Use

LEMTRADA Events

Attend a live event or watch one online to learn more about LEMTRADA.


More From this Blogger

  • Meeting My Teammates —MS One to One®

    December 15, 2016

    LEMTRADA was approved on November 14, 2014, in the US. How do I know this date so well? Because I ha ...

  • Tackling My Relapsing MS Head-On

    December 7, 2016

    I remember when it happened—when relapsing MS showed up uninvited, but I processed the news, a ...

  • Perfection to Progression: My RMS Diagnosis

    December 6, 2016

    When it comes to my life, I’ve always been batting a thousand. Spending time with my family is ...


Tags

Show Less
  • FAMILY
  • PATIENT
  • YEAR 1
  • DIAGNOSIS
  • THE DECISION
  • SUPPORT
  • TREATMENT
  • NURSE
  • CARE PARTNER
  • LIVING WITH RELAPSING MS
  • CLINICAL TRIALS
  • INFUSION PREP
  • SYMPTOMS
  • HOBBIES
  • MS ONE TO ONE
  • CHILDREN
  • NEUROLOGIST
  • EDUCATION
  • EDUCATION
  • DISABILITY PROGRESSION
  • HEALTHCARE PROVIDER
  • EXERCISE
  • TIPS
  • RELATIONSHIPS
  • SIDE EFFECTS
  • RELAPSE
  • RESOURCES
  • INFUSION
  • POST-INFUSION
  • MONITORING
  • HOPE
  • COMMUNITY
  • FRIENDS
  • YEAR 2
  • GOALS
  • CAREER
  • FINANCE
  • VOLUNTEER
  • EVENTS
  • HOPE
  • NUTRITION
  • HOLIDAYS
  • RESULTS
  • RELAPSING MS