menu

LEMTRADA is a prescription medicine used to treat adults with relapsing forms of multiple sclerosis (MS). Because of its risks, LEMTRADA is generally used in people who have tried 2 or more MS medicines that have not worked well enough. It is not known if LEMTRADA is safe and effective for use in children under 17 years of age.

View IMPORTANT SAFETY INFORMATION

How I Beat the Summer Heat with Relapsing MS LEMTRADA patient blogger: Kimberly By Kimberly, Texas Gal, Born and Raised • July 17, 2018

Beating the Summer Heat with Relapsing MS

If you have relapsing MS, you probably know that MS heat sensitivity can be a problem. And living in Texas, I face this problem pretty often, especially in the summer! So how do I handle the heat? Well, I have a few strategies.

I like to begin with a game plan. I call it Kimberly’s Plan of Attack! I’m a morning person, so I start my summer days by waking up at 5:00 am and heading to the gym. The sun isn’t up, so it’s cooler at that time. Then I’ll head home. Once I get home, I take a minute to rest, cook breakfast, and then gather everyone around so we can go over our day. One child has basketball, one child has summer camp, and another has to go to the barn where we both ride horses. So we discuss as a family to make sure EVERYONE has what they need.

The barn where we ride is great. All of the horses have fans in their stalls, plus there is an air-conditioned facility on site, so I can always go in there if the heat is too much. Depending on the day, I might have a riding lesson after my daughter. In order to stay cool, I’ll throw on my cooling vest and both my horse and I will take regular water breaks. Sometimes it can get very hard, but my trainer is very good at asking me questions to make sure I’m feeling okay. After my lesson, I sit in the shade, drink more water, and have my fan going.

One thing that I’ve found very helpful for MS heat intolerance is always traveling with a cooler. I fill it with ice, water, fruit, granola bars—things that keep me energized and moving throughout the day. It’s hot in Texas, so when I’m driving my kids around, the sun coming through the windows takes a toll. My kids are really good at gauging how I’m feeling. My oldest is a stickler about staying hydrated. But if I still need to cool off more, that’s when we put our heads together and decide what to do next.

One of our favorite ways to cool down is heading to the grocery store for an “ice cream hunt,” where I can stand in front of the freezer and cool down! One local store even has a walk-in freezer section, so I’ll stand in there for a few minutes while I decide on a flavor—our favorites are mint chocolate chip and vanilla bean. My kids will pick their ice creams and then debate how many frozen pizzas they think I’ll buy while I’m in there! It sounds silly, but it works for us!

And it doesn’t always have to be ice cream. Sometimes we get slushies, or a frozen lemonade!

After the long day, we head home and rest. I make sure to spend some time with my husband, and maybe get him a scoop of ice cream so he doesn’t feel left out. :) By then it’s nighttime, so we go to bed and get ready for the next day!

What tips do you have for beating the heat? I’d love to hear them!

  • FAMILY
  • LIVING WITH RELAPSING MS
  • relationships
  • tips



Related Posts

MY LIFE

How to Stay Active in the Summer When You Have Relapsing MS

By Kimberly, Texas Gal, Born and Raised, August 15, 2018

How does one living with relapsing MS stay fit when it’s this hot out? Well, we get creative

MY LIFE

The Balancing Act: Children and Treatment

By Kimberly, Texas Gal, Born and Raised, May 9, 2017

First, I hear the pounding of feet above me. Next, I hear the sound of the tightening of the trigger

0 Comments

Add a comment

All fields required




1000 characters remaining

By clicking the Submit button you are agreeing to our Terms of Use. All submissions must be approved by Sanofi Genzyme before they will be posted.

The information on this page is owned and controlled by Sanofi Genzyme. All submissions will be reviewed and must be approved by Sanofi Genzyme before being posted. Comments that do not directly relate to the topic, potentially violate US FDA regulations, are factually inaccurate or misleading, or are spam, inappropriate, defamatory or use profanity will not be posted.

Please keep your comments respectful and appropriate, and do not reference any product names or product information. We will not post comments that include drug names or descriptions. Please note that Sanofi Genzyme may choose not to post, or may remove, a comment for any reason at any time. Comments on the page from members of the public do not necessarily reflect the views of Sanofi Genzyme, and Sanofi Genzyme does not endorse any content added by other users.

We are required to record and handle the submitted comments in a specific manner to monitor the safety of our product. If you have experienced a side effect or have a complaint specific to a Sanofi Genzyme product, please contact your healthcare provider. In addition, we encourage you to report the event to us by calling Sanofi Genzyme at 800-745-4447, where someone is available to speak with you.

The information on this page is intended for U.S. residents only and is not meant to substitute for the advice provided by a medical professional. Always consult a physician if you have health concerns.

Blog Terms of Use

LEMTRADA Events

Attend a live event or watch one online to learn more about LEMTRADA.


More From this Blogger

  • Stay Hopeful and Keep Moving While Living with RMS

    January 25, 2017

    As I was saying in my previous post, sharing my relapsing MS story is important to me. When I was di ...

  • Relapsing MS Support Starts at Home: Making My A-Team

    December 5, 2016

    One question people ask me all the time is: What inspires you to keep going? And that’s easy t ...

  • Hello World: Me and My Summer Memories

    December 2, 2016

    What’s been going on this year, you ask? Well, the past few months have ...


Tags

Show Less
  • FAMILY
  • PATIENT
  • YEAR 1
  • DIAGNOSIS
  • THE DECISION
  • SUPPORT
  • TREATMENT
  • NURSE
  • CARE PARTNER
  • LIVING WITH RELAPSING MS
  • CLINICAL TRIALS
  • INFUSION PREP
  • SYMPTOMS
  • HOBBIES
  • MS ONE TO ONE
  • CHILDREN
  • NEUROLOGIST
  • EDUCATION
  • EDUCATION
  • DISABILITY PROGRESSION
  • HEALTHCARE PROVIDER
  • EXERCISE
  • TIPS
  • RELATIONSHIPS
  • SIDE EFFECTS
  • RELAPSE
  • RESOURCES
  • INFUSION
  • POST-INFUSION
  • MONITORING
  • HOPE
  • COMMUNITY
  • FRIENDS
  • YEAR 2
  • GOALS
  • CAREER
  • FINANCE
  • VOLUNTEER
  • EVENTS
  • HOPE
  • NUTRITION
  • HOLIDAYS
  • RESULTS
  • RELAPSING MS
  • DECISION-MAKING
  • COMMUNICATION
  • SELF-ADVOCACY
  • MAKING A SWITCH
  • DECISION