menu

LEMTRADA is a prescription medicine used to treat adults with relapsing forms of multiple sclerosis (MS). Because of its risks, LEMTRADA is generally used in people who have tried 2 or more MS medicines that have not worked well enough. It is not known if LEMTRADA is safe and effective for use in children under 17 years of age.

View IMPORTANT SAFETY INFORMATION

Take Action: Getting Involved in the Relapsing Multiple Sclerosis Community LEMTRADA patient blogger: Donnie By Donnie, Father, Husband, Project Leader, Former Athlete • September 26, 2018

People participating in an MS walk

World MS Day typically falls in May. So why am I talking about it now? Well, MS is in my world every day. So I feel it’s important to spread awareness all year long. Awareness events and activities allow those who are affected by MS to come together. They are an opportunity to meet other individuals who live with this disease, to build relationships, and for families to swap stories and talk about their own unique experiences. Most importantly they’re an opportunity to shine a light on this disease and its impact.

MS awareness is not a new thing for my family and me. My wife and I participated in our first MS walk way back in 2001 with both of our daughters—one in a stroller and one walking. Since that time, we have tried to attend as many of these walks as possible. In our town, there is a walk that is organized by the National MS Society. You can find the information about events near you at the National MS Society website.

While the walks are probably the most well-known events, there are all kinds of ways to get the word out about multiple sclerosis. Over the last couple of years, the company that I work for has sponsored a team in Bike MS. Last year the team was able to raise more than $1,000 dollars. While I did not participate in the ride, I was able to raise a significant amount from my coworkers at the site where I work. It really meant a lot to me that they were so supportive and involved.

Participants in a Bike MS event

Over the years I have acquired a small collection of MS event paraphernalia. Shirts, hats, bracelets, bumper stickers, you name it. I have even contemplated getting an MS-themed tattoo, but I haven’t pulled the trigger yet. I have multiple tattoos already, but at my age I don’t know if I need another one.

Regardless of the way you choose to support the MS community, every little bit helps. I would encourage everyone to get out and participate. The actions you take could lift the spirits of those living with MS, you may meet some really great people, and, who knows, some of the funds you help raise might lead to a research breakthrough!

Let me know, how do you spread MS awareness?

  • FAMILY
  • LIVING WITH RELAPSING MS
  • relapsing ms
  • SUPPORT



Related Posts

MY LIFE

Summer Vacation with Relapsing MS

By Donnie, Father, Husband, Project Leader, Former Athlete, July 10, 2018

The summer is going to be a big one for my family … and I’m planning ahead to make sure I can manage my relapsing MS

MY TEAM

My Amazing Family: My Care Partners

By Donnie, Father, Husband, Project Leader, Former Athlete, September 27, 2017

My two girls really can’t remember me before I had relapsing MS. I was diagnosed in 2000 when Brooklyn was 4 and Hannah was 2.
 

0 Comments

Add a comment

All fields required




1000 characters remaining

By clicking the Submit button you are agreeing to our Terms of Use. All submissions must be approved by Sanofi Genzyme before they will be posted.

The information on this page is owned and controlled by Sanofi Genzyme. All submissions will be reviewed and must be approved by Sanofi Genzyme before being posted. Comments that do not directly relate to the topic, potentially violate US FDA regulations, are factually inaccurate or misleading, or are spam, inappropriate, defamatory or use profanity will not be posted.

Please keep your comments respectful and appropriate, and do not reference any product names or product information. We will not post comments that include drug names or descriptions. Please note that Sanofi Genzyme may choose not to post, or may remove, a comment for any reason at any time. Comments on the page from members of the public do not necessarily reflect the views of Sanofi Genzyme, and Sanofi Genzyme does not endorse any content added by other users.

We are required to record and handle the submitted comments in a specific manner to monitor the safety of our product. If you have experienced a side effect or have a complaint specific to a Sanofi Genzyme product, please contact your healthcare provider. In addition, we encourage you to report the event to us by calling Sanofi Genzyme at 800-745-4447, where someone is available to speak with you.

The information on this page is intended for U.S. residents only and is not meant to substitute for the advice provided by a medical professional. Always consult a physician if you have health concerns.

Blog Terms of Use

LEMTRADA Events

Attend a live event or watch one online to learn more about LEMTRADA.


More From this Blogger

  • Meeting My Teammates —MS One to One®

    December 15, 2016

    LEMTRADA was approved on November 14, 2014, in the US. How do I know this date so well? Because I ha ...

  • Tackling My Relapsing MS Head-On

    December 7, 2016

    I remember when it happened—when relapsing MS showed up uninvited, but I processed the news, a ...

  • Perfection to Progression: My RMS Diagnosis

    December 6, 2016

    When it comes to my life, I’ve always been batting a thousand. Spending time with my family is ...


Tags

Show Less
  • FAMILY
  • PATIENT
  • YEAR 1
  • DIAGNOSIS
  • THE DECISION
  • SUPPORT
  • TREATMENT
  • NURSE
  • CARE PARTNER
  • LIVING WITH RELAPSING MS
  • CLINICAL TRIALS
  • INFUSION PREP
  • SYMPTOMS
  • HOBBIES
  • MS ONE TO ONE
  • CHILDREN
  • NEUROLOGIST
  • EDUCATION
  • EDUCATION
  • DISABILITY PROGRESSION
  • HEALTHCARE PROVIDER
  • EXERCISE
  • TIPS
  • RELATIONSHIPS
  • SIDE EFFECTS
  • RELAPSE
  • RESOURCES
  • INFUSION
  • POST-INFUSION
  • MONITORING
  • HOPE
  • COMMUNITY
  • FRIENDS
  • YEAR 2
  • GOALS
  • CAREER
  • FINANCE
  • VOLUNTEER
  • EVENTS
  • HOPE
  • NUTRITION
  • HOLIDAYS
  • RESULTS
  • RELAPSING MS
  • DECISION-MAKING
  • COMMUNICATION
  • SELF-ADVOCACY
  • MAKING A SWITCH
  • DECISION