Monthly Monitoring: One Part of My To-Do List By Rachel, Wife, Mother, Domestic Engineer • October 18, 2017
During my experience speaking at LEMTRADA events, I have noticed that the commitment of monitoring for 4 years or longer after your last round of treatment tends to be a topic of concern for people who are considering LEMTRADA. There has been a lot of noticeable mouthing of the words, “That's a lot of monitoring!” but I think by talking about my personal experience, I can help you understand what it’s really like and what it means to me.
In my case, regular monitoring has become analogous to running errands. I make sure to fit it into my schedule like I do with going to the post office or doing the grocery shopping. It is important, and yet, it is just part of my routine. The last time I had to do monitoring, my day went something like this:
What's been great for me is that my MS One to One® Nurse calls me to schedule and to remind me when it's time for my labs. Being that I’m a busy wife and mom, that has been a huge help to me! I've got a lot to remember trying to juggle and manage our busy and ever-changing household schedules (emphasis on schedules–there are 5 of us, yikes!). If a personal matter comes up and I need to reschedule, accommodations are made so I can. My nurse has always been great working with me and my needs.
One thing I always share about monthly monitoring is that there are several options available to get your blood and urine collections, depending on your lifestyle. You can visit a Quest Diagnostics® Lab or LabCorp®, visit your healthcare provider’s office, or have a lab technician come to your workplace or home—whatever works best for you!
When it comes down to it, I understand how important it is to make sure that I complete regular monitoring to detect possible side effects. In fact, because of this monthly monitoring, I know that although potential side effects may occur, my healthcare team is looking for them and can help address them if they do.
I also use visits with my doctor as opportunities to touch base or go over any thoughts or concerns I might have that aren't urgent. Having an open line of communication and support from my healthcare providers has been important to me. And I truly feel like I am actively participating in my own wellness by completing monthly monitoring.
- MS ONE TO ONE
Caring for Yourself After Infusions
By Rachel, Wife, Mother, Domestic Engineer, November 15, 2017
Anyone who has ever flown on an airplane has certainly heard the flight attendants give the advice
My Experience with Side Effects
By Rachel, Wife, Mother, Domestic Engineer, April 6, 2017
*Insider advice: Keep a journal of some sort to document your entire infusion experience. It’s a great way to keep track
Attend a live event or watch one online to learn more about LEMTRADA.
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