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LEMTRADA is a prescription medicine used to treat adults with relapsing forms of multiple sclerosis (MS). Because of its risks, LEMTRADA is generally used in people who have tried 2 or more MS medicines that have not worked well enough. It is not known if LEMTRADA is safe and effective for use in children under 17 years of age.

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Monthly Monitoring: One Part of My To-Do List LEMTRADA patient blogger: Rachel By Rachel, Wife, Mother, Domestic Engineer • October 18, 2017

LEMTRADA monthly monitoring and scheduling it into your to-do list

During my experience speaking at LEMTRADA events, I have noticed that the commitment of monitoring for 4 years or longer after your last round of treatment tends to be a topic of concern for people who are considering LEMTRADA. There has been a lot of noticeable mouthing of the words, “That's a lot of monitoring!” but I think by talking about my personal experience, I can help you understand what it’s really like and what it means to me.

In my case, regular monitoring has become analogous to running errands. I make sure to fit it into my schedule like I do with going to the post office or doing the grocery shopping. It is important, and yet, it is just part of my routine. The last time I had to do monitoring, my day went something like this:

What's been great for me is that my MS One to One® Nurse calls me to schedule and to remind me when it's time for my labs. Being that I’m a busy wife and mom, that has been a huge help to me! I've got a lot to remember trying to juggle and manage our busy and ever-changing household schedules (emphasis on schedules–there are 5 of us, yikes!). If a personal matter comes up and I need to reschedule, accommodations are made so I can. My nurse has always been great working with me and my needs.

One thing I always share about monthly monitoring is that there are several options available to get your blood and urine collections, depending on your lifestyle. You can visit a Quest Diagnostics® Lab or LabCorp®, visit your healthcare provider’s office, or have a lab technician come to your workplace or home—whatever works best for you! 

When it comes down to it, I understand how important it is to make sure that I complete regular monitoring to detect possible side effects. In fact, because of this monthly monitoring, I know that although potential side effects may occur, my healthcare team is looking for them and can help address them if they do.

I also use visits with my doctor as opportunities to touch base or go over any thoughts or concerns I might have that aren't urgent. Having an open line of communication and support from my healthcare providers has been important to me. And I truly feel like I am actively participating in my own wellness by completing monthly monitoring.

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