My Infusion Experience — and Support Throughout! By Kimberly, Texas Gal, Born and Raised • February 6, 2017
Immediately after deciding to start LEMTRADA to treat my relapsing MS, I got even more support from the comfort of my own home, where I received a phone call from my MS One to One® Nurse. She did an AMAZING job of introducing herself and explaining the MS One to One program to me. She helped me mentally prepare for my infusions and told me what to expect before and after my LEMTRADA treatment. We talked about the pretreatment medications I’d receive and the testing that would be done to prevent infusion-related side effects. When I had questions about things like infusion reactions, my MS One to One Nurse did a phenomenal job of answering them in a way that did not incite panic. Again, mentally I was ready—and she played a pretty big role in making that happen!
My MS One to One Nurse helped eliminate a lot of the apprehension and mystery around what to expect and what to bring for my infusion week, and I am very grateful for her advice. Some of the most common side effects people can get when treating with LEMTRADA include headache, fever and rash. I must admit, knowing the possibilities of side effects really helped me prepare for my infusions.
So when I went to my first infusion day, I knew to bring a light blanket, some healthy snacks, plenty of water, and something to occupy my time, because I was going to be there for a while. By the third day, I was tired of binge-watching television shows, so I decided to watch DIY videos on YouTube. I found a “Learn How to Knit” video and taught myself how to knit.
My motto throughout this entire experience and to this day is “stay positive.” So, if you’re trying to decide if LEMTRADA is the right course of action for you, I would tell you to stay positive, ask questions, be your own advocate, talk to your neurologist, and connect with MS One to One.
- INFUSION PREP
- MS ONE TO ONE
- side effects
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