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LEMTRADA is a prescription medicine used to treat adults with relapsing forms of multiple sclerosis (MS). Because of its risks, LEMTRADA is generally used in people who have tried 2 or more MS medicines that have not worked well enough. It is not known if LEMTRADA is safe and effective for use in children under 17 years of age.

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Taking on Halloween & Trick-or-Treating with Relapsing Multiple Sclerosis LEMTRADA patient blogger: Rachel By Rachel, Wife, Mother, Domestic Engineer • October 22, 2018

Relapsing MS patient, Rachel, and her husband in their Halloween costumes

When you have relapsing MS, the mere thought of trick-or-treating with the kids can be intimidating. Especially when you consider the possible mobility and stamina issues you may encounter. I LOVE seeing all the little (or not so little) ones showing off their creativity in their fun Halloween costumes. Anyone who knows me will tell you that I’m truly a kid at heart. I see no point in not playing just because you’re a grown-up—what does that even mean, anyway? Since I like to join in on the fun, but also have to prepare for any relapsing MS symptoms that may arise, I’ve got a few tricks (or treats) up my sleeve. Over the years they have helped me and allowed me to participate, despite relapsing MS.

Our home is located on a country road, which makes trick-or-treating nearby inconceivable. Actually, no one who lives on our street even passes out treats! Instead, we choose a nearby neighborhood, join up with some friends, and off we go. I know that sometimes, especially at the end of a long day, my energy can be worn thin. So we have to make some smart choices when it comes to where we take the kids trick-or-treating. We try to pick an area with houses that are close together and that doesn’t have a whole lot of hills. This way we can hit up many houses with the least amount of physical effort. Honestly, typing this out right now makes me realize that this is an effective and smart approach for anyone—MS or not! Hah! And the kids certainly don’t complain about this method when they come home with loads of candy.

Rachel’s children in their Halloween costumes

There have been years that my children wanted to go out trick-or-treating with friends in a more challenging neighborhood. I took those opportunities to stay back with another parent and hand out candy instead of trying to traverse the lengthy terrain. Although there have been times that I’ve been up for more of a Halloween adventure, we all know how different each day can be while living with relapsing MS. Sometimes decisions I made yesterday have to be changed today or tomorrow. You know what? I’m OK with that! There’s always a silver lining and I do my best to seek the positive in any situation—all while looking for tangible ways to help me live my life to its fullest potential! Your Halloween can be a blast with a little bit of preparation. Every day and every experience is a gift in one way or another.

What creative solutions have you come up with to help you enjoy activities like trick-or-treating? I’d love to hear them.

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