Getting Ready for Treatment By Chad, Husband, Father, Software Engineer • May 4, 2017
When I was considering LEMTRADA, I found there were quite a few things I needed to plan for—so I got right on it!
My life at home
First and foremost, I needed to think about my family. My wife and I have four children who are usually going in four different directions (which is hard enough to deal with when both their parents are available). But when the peak days of summer fun are in season, I’d be receiving my treatment and who knows how long I’d be unavailable after each round, so we planned everything out. We wanted to make sure the kids were kept busy and I had time to relax after my infusions.
So we made plans that everyone was quite pleased with. Our oldest son would be at a church camp in another state close by and our two daughters would be at another church camp, also in a state close by. Our fourth child would be attending a local school during the day. And when the kids weren’t away at camp, we were (and always have been) fortunate to have some wonderful family and friends who were willing to help. Some people may think they have nobody to help, but you may be surprised how many people are just waiting to be asked and are more than willing to lend a hand. It never hurts to ask for help—well maybe it hurts our pride a bit—but this kind of help could really make a difference for you, so remember that.
My community of faith
I’m also an active member in the community when it comes to my faith, so I decided it would be best to inform the people at church that I’d be unavailable for an undetermined amount of time and why, so they didn’t worry. The overwhelming response was of caring and thoughtfulness. I was told my responsibilities would be taken care of while I wasn’t able to attend and was encouraged to just concentrate on helping my relapsing MS.
If you don’t belong to a local organization such as a church or other type of social group where you can get involved in your community, I strongly advise you to look for one. It’s always been a big help for me to have a group of people I can relate to, so I always encourage people to find their own.
My long-time career
Next was planning for my time off work, but I have been very fortunate in that regard as well. My employer for the past 16 years has been very accommodating. I was also able to use my vacation and sick days for treatment, but since a lot of the work I do revolves around using my computer and talking to people on conference calls, I could do that from the infusion center (when I was in my own room, so I didn’t disturb others). Of course, I didn’t do any work while I was sleeping or watching movies ツ.
When I got to my first year of LEMTRADA, I had already reached my health insurance out-of-pocket max on other treatments. However, with the help of the staff at my neurologist's office and my wonderful MS One to One Nurse, Denise, I was able to schedule treatments in a timely manner, so I didn’t have to pay additional out-of-pocket costs.
I also know that Sanofi Genzyme offers financial assistance in some cases and can help you find other sources of financial assistance if needed, so please don’t hesitate to ask your MS One to One Nurse!
My life after treatment
Now this one may sound a bit weird, but it was something I personally needed to plan for. What if this treatment works well for me and I don’t need to worry as much about relapses or disability progression? Of course, I’d still have existing issues, but I’ve already learned to cope with those. I was hopeful that this would be a wonderful opportunity for me!
So that was my before-treatment to-do list. I know everyone has different situations and different responsibilities, but no matter what they are, my advice to you would be to plan, plan, plan!
- CARE PARTNER
- LIVING WITH RELAPSING MS
- MS ONE TO ONE
My Fellow Superheroes: My Care Team
By Rachel, Wife, Mother, Domestic Engineer, May 17, 2017
Hello, my name is Rachel and I am superhuman (I’ll title myself as Super Rachel) and I am indestructible, right?! NOPE—wrong answer
By Chad, Husband, Father, Software Engineer, April 14, 2017
If you’re anything like me, one of the initial thoughts crossing your mind after hearing, “you have relapsing MS” is “why me?
Attend a live event or watch one online to learn more about LEMTRADA.
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