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LEMTRADA is a prescription medicine used to treat adults with relapsing forms of multiple sclerosis (MS). Because of its risks, LEMTRADA is generally used in people who have tried 2 or more MS medicines that have not worked well enough. It is not known if LEMTRADA is safe and effective for use in children under 17 years of age.

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Finding MS Support Groups MS One to One By MS One to One • March 13, 2017

Multiple Sclerosis Supprt Group

Hi there, I’m Sandra and I have been a Registered Nurse since 1982 and am certified in multiple sclerosis nursing on the MS One to One team. During my nursing career I have worked in a wide variety of nursing settings and I’m passionate about working with patients and families to help them achieve the best of health possible. One thing that I’ve found my patients and their families really seem to appreciate is the opportunity to participate in MS support groups and services—and there are so many of them!

As I’m sure you know, living with relapsing MS presents some unique issues. And sometimes you could really use some encouragement and understanding that’s different from the kind of support you receive from family and friends. Connecting with people who also have relapsing MS can be inspiring and can help you get through the challenges of MS. So here’s a list of support services offered by some well-known MS organizations that may be of interest to you.

There are various support offerings from the National Multiple Sclerosis Society, which I’ve listed here:

MSconnection.org
It’s a social network and online community for people living with MS, their loved ones, and experts to connect in a safe and secure environment.

Local Support Groups
To find a local group in your area or talk to someone about making your own group, contact MS Navigator at 1-800-344-4867 or visit the NMSS website.

Ask an MS Navigator®
Through this program, you can ask questions, connect with the MS community and learn how to cope with challenges. You may access this program online or by phone (1-800-344-4867). You can also submit questions and a trained MS Society Referral Specialist will assist you.

Edward M. Dowd Personal Advocate Program
This program offers people with relapsing MS case management services if they are facing challenges. There are trained case management professionals who understand relapsing MS and are here to help. If you want to learn more about this program, call 1-800-344-4867 or ContactUsNMSS@nmss.org

One-on-One Peer Connections
There are also peer supporters, who are also living with relapsing MS—and are ready to provide tips, suggestions, and emotional support. You can search for a peer on the NMSS website or you can reach via email at peerconnections@nmss.org. You can also apply to be a peer supporter if you’re interested.

MSFriends®
This program puts you in touch with volunteers living with relapsing MS as well. And you can participate even if you’re a family member or Care Partner. You can access this service by calling 1-866-673-7436 and volunteers are available 9AM to midnight EST, seven days a week.  

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The Multiple Sclerosis Association of America (MSAA) is a well-known resource in the MS community. And they offer a ton of programs like these for people with relapsing MS:

  • There is a toll-free Helpline staffed with people who have a social services or counseling background. There’s also an email address you can use to contact them: MSquestions@mymsaa.org. And you can also access the helpline through the online MS Chat feature.
     
  • The MSAA also has a blogMS Conversations. So if you’re liking what you’re seeing in this blog, be sure to check it out.
     
  • There are also programs available for those who need cooling equipment and assistive equipment.
     
  • If you’re looking at treatment options, the S.E.A.R.CH.™ Program can educate you about what important questions to ask when selecting a treatment.
     
  • My MS Manager™ is a free mobile phone app for your tablet or mobile device. It offers relapsing MS patients a tool to manage their disease.

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The Multiple Sclerosis Foundation also offers programs and support services to people who have relapsing MS and their Care Partners. And the programs aren’t just specifically for MS—they’re for your overall wellbeing. Here are some that stand out to me:

  • They have a National Toll-Free Helpline/Spanish Helpline with caseworkers and peer counselors who will listen and provide free individualized support—in person, over the phone, or online.
     
  • MSF offers 170 support groups nationwide. They’re designed to be motivational and inspirational.
     
  • In addition to Support Groups, MSF offers other support services like a Homecare Grant Program, an Assistive Technology Program, a Grant Program, a Health and Wellness Program, a Cooling Program, a Lending Library and peer counseling.
     
  • To top it off, you can take part in the MSF Cruise for a Cause as well.

    There really are a ton of support services and programs all throughout the MS community. If you are looking for support, you should explore these programs, because you might find the information and support you’ve been looking for—or maybe the information you didn’t even know you needed!

    Sanofi Genzyme does not own or endorse the content on these sites.

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