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LEMTRADA is a prescription medicine used to treat adults with relapsing forms of multiple sclerosis (MS). Because of its risks, LEMTRADA is generally used in people who have tried 2 or more MS medicines that have not worked well enough. It is not known if LEMTRADA is safe and effective for use in children under 17 years of age.

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Treatment Decisions and the Power of Change LEMTRADA patient blogger: Katy By Katy, Wife, Writer, and Yoga Instructor • March 20, 2019

The Power of Change: Katy's Relapsing MS Treatment Journey

The decision to change treatments was not a difficult one. My relapsing multiple sclerosis was no longer responding to other approved disease modifying therapies on the market, and I was in the midst of a relapse.

That’s when I knew I needed a change. My neurologist thought that I may be a good candidate for LEMTRADA. Relapses were only one of many factors he considered. My goals, my age, and my willingness to really be a partner in my care were some factors too. Together we decided I should try LEMTRADA.

The change truly would be a leap of faith. We were not sure exactly if it would work—I didn’t have any luck with other medications. And I was a little apprehensive to switch medications again. But I was not willing to give up.

I waited patiently as my neurologist set up my treatment plan. I stayed on oral steroids in the meantime, a protocol that left me thinner than usual and a little jittery. When the week of my first course of LEMTRADA finally arrived, I was thrilled to receive the infusion. I took my husband with me to the infusion center we would call home as I took my treatment for five consecutive days. I had the pre-medications my doctor prescribed, including an antihistamine and an antiviral.

After five days of treatment, I was exhausted from the infusions. Because my doctor and I had discussed the potential side effects of LEMTRADA, I knew this was a possibility following the infusions. I also experienced swelling and tenderness of my gums for a few days after I got home, so I drank milkshakes while I rested on the couch. My second course was 3 days in a row of infusions. I knew what to expect this time, including which medications to take to try to reduce the chances of infusion-related side effects.

It’s been a while since I’ve completed treatment, including my second course, and I am still so grateful to my doctor for giving me the opportunity to try a medication that would help treat my disease. I tend to have a hard time with change, but my experience with LEMTRADA beautifully illustrates the benefits that come with making an informed decision to try something else.

  • results
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  • making a switch
  • neurologist



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  • FAMILY
  • PATIENT
  • YEAR 1
  • DIAGNOSIS
  • THE DECISION
  • SUPPORT
  • TREATMENT
  • NURSE
  • CARE PARTNER
  • LIVING WITH RELAPSING MS
  • CLINICAL TRIALS
  • INFUSION PREP
  • SYMPTOMS
  • HOBBIES
  • MS ONE TO ONE
  • CHILDREN
  • NEUROLOGIST
  • EDUCATION
  • EDUCATION
  • DISABILITY PROGRESSION
  • HEALTHCARE PROVIDER
  • EXERCISE
  • TIPS
  • RELATIONSHIPS
  • SIDE EFFECTS
  • RELAPSE
  • RESOURCES
  • INFUSION
  • POST-INFUSION
  • MONITORING
  • HOPE
  • COMMUNITY
  • FRIENDS
  • YEAR 2
  • GOALS
  • CAREER
  • FINANCE
  • VOLUNTEER
  • EVENTS
  • HOPE
  • NUTRITION
  • HOLIDAYS
  • RESULTS
  • RELAPSING MS
  • DECISION-MAKING
  • COMMUNICATION
  • SELF-ADVOCACY
  • MAKING A SWITCH
  • DECISION