5 Lessons From the First 5 Days of Infusions By Rachel, Wife, Mother, Domestic Engineer • February 14, 2017
1. Get in the “zone”—GAME ON
Maintaining a positive attitude (as difficult as that may be at times) is something that I’ve always tried to do. It’s safe to say it’s become a personal skill of mine. One can’t always change a situation, but we can always change our perspective. Keeping a positive attitude during my infusion days made it a little easier for me to get to the finish line. So hold on to those happy thoughts! Last time I checked, a positive attitude never hurt anyone.
2. Pack a party bag
Knowing I was going to be spending some quality time at the infusion center, I made sure to pack a party bag to bring with me. Yes, I said party bag. Everything sounds so much more fun when you throw the word “party” into it. I brought things like my medication, a journal, a water bottle (hydration is important ALL THE TIME), a couple of good books and magazines, my favorite hand cream, and some nutritious snacks. I also made sure to bring my earphones so I could listen to some of my favorite music. My party bag ended up being a great idea to help me pass the time.
3. Stay on top of side effects
On the third day of infusions, I began to experience infusion-related side effects, which was when I learned the importance of listening to my doctor and managing my side effects with medication. The medication my doctor gave me really helped, and I made sure to take it at the appropriate times, because that’s essential for it to work. Sure, infusions weren’t the easiest thing I’ve ever done, but for me the infusion side effects were manageable.
4. Think of it as a renovation period
Sometimes things have to get worse before they get better. Anyone who’s done a large project or home renovation knows that any major undertaking can start out pretty messy. Well, for the first 5 infusion days I felt like my body was under renovation. By the 5th day I was utterly worn out and some of my preexisting symptoms temporarily worsened. But as with any huge project, for me, the end result was totally worth it!
5. The five days of dosing worked for me
The LEMTRADA dosing schedule was different from my previous relapsing MS treatments. After completing my first 5 infusion days with LEMTRADA, I knew I'd have to have monthly monitoring of my blood and urine until 4 years or longer after my last round of infusions. However, I felt better knowing I didn’t need treatment again for a year!
- INFUSION PREP
Caring for Yourself After Infusions
By Rachel, Wife, Mother, Domestic Engineer, November 15, 2017
Anyone who has ever flown on an airplane has certainly heard the flight attendants give the advice
My Experience with Side Effects
By Rachel, Wife, Mother, Domestic Engineer, April 6, 2017
*Insider advice: Keep a journal of some sort to document your entire infusion experience. It’s a great way to keep track
Attend a live event or watch one online to learn more about LEMTRADA.
More From this Blogger
My Experience with Side Effects
April 6, 2017
*Insider advice: Keep a journal of some sort to document your entire infusion ...
“Momming” with Relapsing MS
December 22, 2016
Being slapped (maybe more like sucker-punched) with a relapsing MS diagnosis as a young new mother w ...
Time to Take Action Against My RMS
December 21, 2016
Another relapse. I remember the morning very clearly, although I couldn’t see very cl ...