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LEMTRADA is a prescription medicine used to treat adults with relapsing forms of multiple sclerosis (MS). Because of its risks, LEMTRADA is generally used in people who have tried 2 or more MS medicines that have not worked well enough. It is not known if LEMTRADA is safe and effective for use in children under 17 years of age.

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5 Lessons From the First 5 Days of Infusions LEMTRADA patient blogger: Rachel By Rachel, Wife, Mother, Domestic Engineer • February 14, 2017

LEMTRADA® patient: Rachel

1. Get in the “zone”—GAME ON
Maintaining a positive attitude (as difficult as that may be at times) is something that I’ve always tried to do. It’s safe to say it’s become a personal skill of mine. One can’t always change a situation, but we can always change our perspective. Keeping a positive attitude during my infusion days made it a little easier for me to get to the finish line. So hold on to those happy thoughts! Last time I checked, a positive attitude never hurt anyone.

2. Pack a party bag
Knowing I was going to be spending some quality time at the infusion center, I made sure to pack a party bag to bring with me. Yes, I said party bag. Everything sounds so much more fun when you throw the word “party” into it. I brought things like my medication, a journal, a water bottle (hydration is important ALL THE TIME), a couple of good books and magazines, my favorite hand cream, and some nutritious snacks. I also made sure to bring my earphones so I could listen to some of my favorite music. My party bag ended up being a great idea to help me pass the time.

3. Stay on top of side effects
On the third day of infusions, I began to experience infusion-related side effects, which was when I learned the importance of listening to my doctor and managing my side effects with medication. The medication my doctor gave me really helped, and I made sure to take it at the appropriate times, because that’s essential for it to work. Sure, infusions weren’t the easiest thing I’ve ever done, but for me the infusion side effects were manageable.

4. Think of it as a renovation period
Sometimes things have to get worse before they get better. Anyone who’s done a large project or home renovation knows that any major undertaking can start out pretty messy. Well, for the first 5 infusion days I felt like my body was under renovation. By the 5th day I was utterly worn out and some of my preexisting symptoms temporarily worsened. But as with any huge project, for me, the end result was totally worth it!

5. The five days of dosing worked for me
The LEMTRADA dosing schedule was different from my previous relapsing MS treatments. After completing my first 5 infusion days with LEMTRADA, I knew I'd have to have monthly monitoring of my blood and urine until 4 years or longer after my last round of infusions. However, I felt better knowing I didn’t need treatment again for a year!

  • HOBBIES
  • INFUSION PREP
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  • FAMILY
  • PATIENT
  • YEAR 1
  • DIAGNOSIS
  • THE DECISION
  • SUPPORT
  • TREATMENT
  • NURSE
  • CARE PARTNER
  • LIVING WITH RELAPSING MS
  • CLINICAL TRIALS
  • INFUSION PREP
  • SYMPTOMS
  • HOBBIES
  • MS ONE TO ONE
  • CHILDREN
  • NEUROLOGIST
  • EDUCATION
  • EDUCATION
  • DISABILITY PROGRESSION
  • HEALTHCARE PROVIDER
  • EXERCISE
  • TIPS
  • RELATIONSHIPS
  • SIDE EFFECTS
  • RELAPSE
  • RESOURCES
  • INFUSION
  • POST-INFUSION
  • MONITORING
  • HOPE
  • COMMUNITY
  • FRIENDS
  • YEAR 2
  • GOALS
  • CAREER
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  • NUTRITION
  • HOLIDAYS
  • RESULTS
  • RELAPSING MS
  • DECISION-MAKING
  • COMMUNICATION
  • SELF-ADVOCACY
  • MAKING A SWITCH
  • DECISION