menu

LEMTRADA is a prescription medicine used to treat adults with relapsing forms of multiple sclerosis (MS). Because of its risks, LEMTRADA is generally used in people who have tried 2 or more MS medicines that have not worked well enough. It is not known if LEMTRADA is safe and effective for use in children under 17 years of age.

View IMPORTANT SAFETY INFORMATION

Share, Send, or Save

Talking Tech: RMS-Friendly Technology LEMTRADA patient blogger: Chad By Chad, Husband, Father, Software Engineer • June 28, 2017

Relapsing MS-Friendly Technology

Multiple sclerosis has been around for quite some time, presenting us with many challenges. But what hasn’t been around for very long are ways to help us keep up with the challenges, like technology.

In my opinion, we’re in the golden age of technology. There’s something for everyone—from walking aids to apps—presenting us with so many helpful tools we never would’ve imagined years ago. And the tools I use help me on a monthly, weekly, daily, and even hourly basis.

For example, at multiple points throughout the day I have an app that gives me reminders to take my different medications. It’s a free app, and it has a database of thousands of medications, what they look like, doses, interactions with other medications, and of course custom reminders. I can’t even begin to fathom how many times I’ve completely forgotten about meds only to be reminded by my app. I am very grateful for this.

When it comes to medications I’ve found an app made by my pharmacy to be very helpful when it comes to taking my premedications and other medicines I need. And many other pharmacies offer something similar, so you should definitely ask your pharmacy. What I really like about this app is that I can refill my prescriptions anytime, anyplace. I also get reminders of when it’s time for me to refill my prescriptions, so I really don’t have an excuse to not be on track!

The LEMTRADA MyLink app comes in handy as well. There’s space for me to add contact information for members of my healthcare team, and there’s also a section where I can set appointment reminders for any appointments I may have. Perhaps the most important feature of the app for me is that it reminds me when I need to complete monthly monitoring.

Once you’ve taken LEMTRADA, there are monthly lab tests that are required through the REMS (Risk Evaluation and Mitigation Strategy) Program, which you need to have for 48 months after your last LEMTRADA infusion to detect some possible side effects. It’s my healthcare provider’s job to monitor my lab results after taking LEMTRADA, but the lab collecting and processing my samples also makes the abbreviated results available to me. I like that I can also see them.

All these apps are very helpful but remember any amount of reminders will do no good if not set up correctly or you don’t pay attention to them. I have calendar reminders, social media reminders, and other reminders, so a trick I use to help me focus on the important ones is to set a tone or song that is different than anything else on my phone.

What types of tech do you find helpful when it comes to your relapsing MS? I’m always looking for tools to make my life easier!

  • LIVING WITH RELAPSING MS
  • monitoring
  • SUPPORT
  • tips



Related Posts

MY EXPERIENCE

Getting Ready for Treatment

By Chad, Husband, Father, Software Engineer, May 4, 2017

When I was considering LEMTRADA, I found there were quite a few things I needed to plan for—so I got right on it!

MY TEAM

Why Me?

By Chad, Husband, Father, Software Engineer, April 14, 2017

If you’re anything like me, one of the initial thoughts crossing your mind after hearing, “you have relapsing MS” is “why me?

0 Comments

Add a comment

All fields required




1000 characters remaining

By clicking the Submit button you are agreeing to our Terms of Use. All submissions must be approved by Sanofi Genzyme before they will be posted.

The information on this page is owned and controlled by Sanofi Genzyme. All submissions will be reviewed and must be approved by Sanofi Genzyme before being posted. Comments that do not directly relate to the topic, potentially violate US FDA regulations, are factually inaccurate or misleading, or are spam, inappropriate, defamatory or use profanity will not be posted.

Please keep your comments respectful and appropriate, and do not reference any product names or product information. We will not post comments that include drug names or descriptions. Please note that Sanofi Genzyme may choose not to post, or may remove, a comment for any reason at any time. Comments on the page from members of the public do not necessarily reflect the views of Sanofi Genzyme, and Sanofi Genzyme does not endorse any content added by other users.

We are required to record and handle the submitted comments in a specific manner to monitor the safety of our product. If you have experienced a side effect or have a complaint specific to a Sanofi Genzyme product, please contact your healthcare provider. In addition, we encourage you to report the event to us by calling Sanofi Genzyme at 800-745-4447, where someone is available to speak with you.

The information on this page is intended for U.S. residents only and is not meant to substitute for the advice provided by a medical professional. Always consult a physician if you have health concerns.

Blog Terms of Use

LEMTRADA Events

Attend a live event or watch one online to learn more about LEMTRADA.


More From this Blogger

  • A Day in the Life of a LEMTRADA patient—me!

    March 21, 2017

    By this point you probably know LEMTRADA is given as an infusion intravenously. But what’s it ...

  • From Invincible ME to Relapsing MS

    January 19, 2017

    When we finish high school and start life in the “real world” we’re all invincible ...

  • My Journey to Choosing LEMTRADA

    January 17, 2017

    Hello everyone, Chad here! No, not “Hanging Chad”… And as cool as having a countr ...


Tags

Show Less
  • FAMILY
  • PATIENT
  • YEAR 1
  • DIAGNOSIS
  • THE DECISION
  • SUPPORT
  • TREATMENT
  • NURSE
  • CARE PARTNER
  • LIVING WITH RELAPSING MS
  • CLINICAL TRIALS
  • INFUSION PREP
  • SYMPTOMS
  • HOBBIES
  • MS ONE TO ONE
  • CHILDREN
  • NEUROLOGIST
  • EDUCATION
  • EDUCATION
  • DISABILITY PROGRESSION
  • HEALTHCARE PROVIDER
  • EXERCISE
  • TIPS
  • RELATIONSHIPS
  • SIDE EFFECTS
  • RELAPSE
  • RESOURCES
  • INFUSION
  • POST-INFUSION
  • MONITORING
  • HOPE
  • COMMUNITY
  • FRIENDS
  • YEAR 2
  • GOALS
  • CAREER
  • FINANCE
  • VOLUNTEER
  • EVENTS
  • HOPE
  • NUTRITION
  • HOLIDAYS
  • RESULTS
  • RELAPSING MS