Talking Tech: RMS-Friendly Technology By Chad, Husband, Father, Software Engineer • June 28, 2017
Multiple sclerosis has been around for quite some time, presenting us with many challenges. But what hasn’t been around for very long are ways to help us keep up with the challenges, like technology.
In my opinion, we’re in the golden age of technology. There’s something for everyone—from walking aids to apps—presenting us with so many helpful tools we never would’ve imagined years ago. And the tools I use help me on a monthly, weekly, daily, and even hourly basis.
For example, at multiple points throughout the day I have an app that gives me reminders to take my different medications. It’s a free app, and it has a database of thousands of medications, what they look like, doses, interactions with other medications, and of course custom reminders. I can’t even begin to fathom how many times I’ve completely forgotten about meds only to be reminded by my app. I am very grateful for this.
When it comes to medications I’ve found an app made by my pharmacy to be very helpful when it comes to taking my premedications and other medicines I need. And many other pharmacies offer something similar, so you should definitely ask your pharmacy. What I really like about this app is that I can refill my prescriptions anytime, anyplace. I also get reminders of when it’s time for me to refill my prescriptions, so I really don’t have an excuse to not be on track!
The LEMTRADA MyLink app comes in handy as well. There’s space for me to add contact information for members of my healthcare team, and there’s also a section where I can set appointment reminders for any appointments I may have. Perhaps the most important feature of the app for me is that it reminds me when I need to complete monthly monitoring.
Once you’ve taken LEMTRADA, there are monthly lab tests that are required through the REMS (Risk Evaluation and Mitigation Strategy) Program, which you need to have for 48 months after your last LEMTRADA infusion to detect some possible side effects. It’s my healthcare provider’s job to monitor my lab results after taking LEMTRADA, but the lab collecting and processing my samples also makes the abbreviated results available to me. I like that I can also see them.
All these apps are very helpful but remember any amount of reminders will do no good if not set up correctly or you don’t pay attention to them. I have calendar reminders, social media reminders, and other reminders, so a trick I use to help me focus on the important ones is to set a tone or song that is different than anything else on my phone.
What types of tech do you find helpful when it comes to your relapsing MS? I’m always looking for tools to make my life easier!
- LIVING WITH RELAPSING MS
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By Chad, Husband, Father, Software Engineer, April 14, 2017
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