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LEMTRADA is a prescription medicine used to treat adults with relapsing forms of multiple sclerosis (MS). Because of its risks, LEMTRADA is generally used in people who have tried 2 or more MS medicines that have not worked well enough. It is not known if LEMTRADA is safe and effective for use in children under 17 years of age.

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When Relapsing MS Expectations and Reality Meet LEMTRADA patient blogger: Chad By Chad, Husband, Father, Software Engineer • May 22, 2018

Chad shares his story of how setting proper expectations in both everyday life and in relapsing MS treatment is important

In this post, I’m going to talk about the importance of setting reasonable expectations when it comes to relapsing MS treatments and finding what works for you. But first, I’ll tell a story about a recent experience I had, where my expectations were certainly not a reality.

I was sitting in the play place of a fast food joint and settling into my table while my son ran, climbed, jumped, squealed, etc. I opened my laptop bag where I keep the devices and cables I need to work remotely. I spun around in my chair with my fingers crossed and checked the wall behind me and spotted a vacant power outlet. Score!

I quickly turned on my devices and started to check my email and some other data feeds. As I replied to a co-worker some 2000 miles away in his remote office it hit me. Technology is really cool! We now can communicate faster than the blink of an eye—even in milliseconds. For those not as much of a nerd as me, a millisecond is equal to one thousandth of one second! 

Then it started going downhill. The web page I was attempting to open took FOREVER to display-my guess, at least 5000 milliseconds. How could I be expected to work when there’s no modern technology around? Five seconds for this page, then a few more seconds to obtain my search results, followed by several more seconds to display them on the screen. Don’t get me wrong, I have patience, just not for technology that lags behind the times.

Then I remembered my location, a child’s play place with free WiFi and a VPN (Virtual Private Network) connection. One with many people working hard crushing candy or sharing wildly pertinent text conversations as they crowded bandwidth. And I remembered something else—if this were 20 years ago, I would’ve been thrilled to have this connection at all. The very idea of free WiFi at a fast food restaurant was incredible. My expectations were different because I knew there were options (my speedy home internet connection leaps to mind).

Why do I bore you with my Friday afternoon happenings? Because this experience reminded me of my journey to find the right relapsing MS treatment for me 20 years ago, we were thrilled to have a handful of treatment options. But now we have a plethora of options.

I knew I couldn’t stay on my previous medications while I was experiencing regular relapses, so I looked for something else. Each person and their MS symptoms and experiences are different. The key is to do your research, read the labels, and use that information to find an option that works for you. And if you run into sloth-speed WiFi? Close the laptop, pick up the fries, and enjoy the downtime.

Have you had to adjust your expectations with relapsing MS? Let me know in the comments!

  • DIAGNOSIS
  • hope
  • LIVING WITH RELAPSING MS
  • TREATMENT



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