Relapsing MS from a Nurse’s Point of View By MS One to One • May 29, 2018
Hello! My name is Lynn. I’ve been a nurse for 36 years, and I’ve been working as an MS One to One® Nurse for over 3 years now. From my time working with relapsing MS patients, I’ve found that it’s different from any other disease. I have also found it to be some of the most interesting and rewarding work I’ve ever done.
One reason I like being an MS One to One MS Nurse is because I get to meet so many interesting people and work with them through every step of their treatment. It typically starts when someone has decided to take LEMTRADA, but anyone can contact an MS One to One Nurse with his or her questions. Once I’ve been assigned to a patient, I’ll call him or her, introduce myself, and explain what we do at MS One to One. I am their Nurse, their main MS One to One contact, and I’m around to answer any questions they have or even just talk. But if they ever have a question at, say 2:00 AM, there are on-call Nurses standing by 24/7 to answer questions. We also have a team of benefits specialists to help them investigate their insurance benefits. The big picture here is that I like to think I can bring a little calm into their lives so that they can focus on what they need.
About a week before the first infusion, I give them a call and we talk about what to bring to the infusion center, what to expect, and how to prepare in general. What’s most exciting is when they’ve finished their first infusion week. That’s an important milestone! Those are some of my favorite calls because they’ve taken a big step in their treatment. And it can be emotional. I’m proud of my patients, so I make sure these calls feel like a little celebration.
After the infusion, I’ll also continue to call and check in, to see how they’re doing and to make sure they’re sticking to the required monthly monitoring schedule. If they’re having any problems with monitoring logistics, we’ll figure out a way to make it work for them. Their success on LEMTRADA is really important to me.
I would have to say that my favorite part of being an MS One to One Nurse is my one to one (ha!) time with my patients. Having the opportunity to be a part of patient programs and to get to meet my patients and their families. It’s nice to actually build on our relationship beyond the telephone and put faces to names. You know, to be able to give them more than just a hug with my voice, and to give them a hug in person.
At my first patient event, I had the opportunity to meet many people living with MS. But I remember one specific patient who came in with his mom and they called my name from across the room. They knew exactly who I was and told me I was part of their team. Those are the moments that make it really worth it. I love my job!
What people may not realize is that my patients are usually at a low point in their lives when I first meet them. They’ve tried a few other medications that didn’t work for them, so they often start by telling me how frustrated they are. I’ve talked to them during the good times and the bad. So when they finish their second course of LEMTRADA, I get to see them on another part of their journey. I’ve heard some really interesting stories over the years. After all they’ve gone through, I’m proud of them.
Relapsing MS is a relentless disease, but working with incredible patients who are determined to fight this disease reminds me why I’m doing this. It’s probably the most rewarding job I’ve ever had.
- MS ONE TO ONE
- THE DECISION
The Nuts and Bolts of Making a Switch in Your Relapsing MS Treatment
By MS One to One, April 20, 2018
Hi all! For those of you who don’t know me, I’m Denise, an MS One to One Nurse
5 Things to Ask an MS One to One Nurse About Choosing LEMTRADA
By MS One to One, March 8, 2018
Hi there—Brenda from MS One to One here! So you’ve heard about LEMTRADA and you’re interested, but where do you go from here
Attend a live event or watch one online to learn more about LEMTRADA.
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