My Fellow Superheroes: My Care Team By Rachel, Wife, Mother, Domestic Engineer • May 17, 2017
Hello, my name is Rachel and I am superhuman (I’ll title myself as Super Rachel) and I am indestructible, right?! NOPE—wrong answer. It’s a tough pill to swallow but we are all merely earthlings.
I do have to say, though, in my opinion any one of us living with a chronic condition like relapsing MS has rights to call themselves superheroes. Let’s face it. There are days when getting out of bed is a tremendous feat deserving a round of applause! I’ve always wondered why we all don’t get our own superhero capes along with the diagnosis. That should really be a thing! As far as I’m concerned, we are ALL superheroes.
Anyway, if you’ve ever watched a film about superheroes, you know that even superheroes need help sometimes. Hey, even everyday people need help sometimes!
NEWS FLASH: IT’S OK TO ASK FOR HELP!
I’d encourage anyone (superhero or not) to say yes to any and all help. Call in the troops. Do what you have to do. I’ve found that people generally like to help others and it makes them feel good. They may not be able to cure your disease or take away the struggle, but they can offer emotional and physical support—and that really makes a difference.
For me, especially right after my diagnosis, asking for and accepting help wasn’t something I was very good at. I’m determined, but I can also be a bit stubborn—see how far I’ve come? I can openly admit that I’m stubborn. I have come to realize that my overdoing it, or not swallowing my pride when I should have, wasn’t doing myself (or anyone around me) any favors. I’m learning. I’m a work in progress. Another thing I’ve learned is the importance of actively communicating your feelings and needs to the people around you. After all, they aren’t mind readers.
My husband has played a key role in my life and he’s definitely one of my biggest heroes. My relapsing MS has actually brought us closer together and sharpened our communication. We’re on this journey together. Whether he’s just lending an ear, running errands for me, or dropping me off and picking me up at the infusion center during treatment time—I’ve been so fortunate to have him as my sidekick. We cry together and we celebrate together! As funny as it may sound, relapsing MS has changed our perspective about life and has helped us cherish all the moments and live our lives to the fullest.
I also have the best in-laws a girl could ask for. They’re always so willing to help anyhow, anytime, anywhere. When I’m not feeling well it’s so comforting to know that I can always count on them to help with the children or whatever we may need.
And then, of course, there are my friends. They’ve been a huge blessing to me. Whether it’s helping carpool the children or gifting my family with a meal in a time of need, I’m one lucky girl to be surrounded by such a great community of people.
Building a strong community around me has been an essential part of my journey with relapsing MS. To me, each and every one of the people who have walked with me on this sometimes wild and crazy journey with relapsing MS are my everyday, real-life superheroes.
They’re superheroes that have saved my behind too many times to count, and have selflessly been willing to help me and come to my aid.
- CARE PARTNER
- LIVING WITH RELAPSING MS
Being Proactive and Living with RMS
By Rachel, Wife, Mother, Domestic Engineer, April 28, 2017
When I was first diagnosed with relapsing MS, I asked myself this: was I going to live with relapsing MS or actually LIVE with relapsing MS?
By Chad, Husband, Father, Software Engineer, April 14, 2017
If you’re anything like me, one of the initial thoughts crossing your mind after hearing, “you have relapsing MS” is “why me?
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