menu

LEMTRADA is a prescription medicine used to treat adults with relapsing forms of multiple sclerosis (MS). Because of its risks, LEMTRADA is generally used in people who have tried 2 or more MS medicines that have not worked well enough. It is not known if LEMTRADA is safe and effective for use in children under 17 years of age.

View IMPORTANT SAFETY INFORMATION

My Fellow Superheroes: My Care Team LEMTRADA patient blogger: Rachel By Rachel, Wife, Mother, Domestic Engineer • May 17, 2017

NA

Hello, my name is Rachel and I am superhuman (I’ll title myself as Super Rachel) and I am indestructible, right?! NOPE—wrong answer. It’s a tough pill to swallow but we are all merely earthlings.

I do have to say, though, in my opinion any one of us living with a chronic condition like relapsing MS has rights to call themselves superheroes. Let’s face it. There are days when getting out of bed is a tremendous feat deserving a round of applause! I’ve always wondered why we all don’t get our own superhero capes along with the diagnosis. That should really be a thing! As far as I’m concerned, we are ALL superheroes.

Anyway, if you’ve ever watched a film about superheroes, you know that even superheroes need help sometimes. Hey, even everyday people need help sometimes!

NEWS FLASH: IT’S OK TO ASK FOR HELP!

I’d encourage anyone (superhero or not) to say yes to any and all help. Call in the troops. Do what you have to do. I’ve found that people generally like to help others and it makes them feel good. They may not be able to cure your disease or take away the struggle, but they can offer emotional and physical support—and that really makes a difference.

For me, especially right after my diagnosis, asking for and accepting help wasn’t something I was very good at. I’m determined, but I can also be a bit stubborn—see how far I’ve come? I can openly admit that I’m stubborn. I have come to realize that my overdoing it, or not swallowing my pride when I should have, wasn’t doing myself (or anyone around me) any favors. I’m learning. I’m a work in progress. Another thing I’ve learned is the importance of actively communicating your feelings and needs to the people around you. After all, they aren’t mind readers.

My husband has played a key role in my life and he’s definitely one of my biggest heroes. My relapsing MS has actually brought us closer together and sharpened our communication. We’re on this journey together. Whether he’s just lending an ear, running errands for me, or dropping me off and picking me up at the infusion center during treatment time—I’ve been so fortunate to have him as my sidekick. We cry together and we celebrate together! As funny as it may sound, relapsing MS has changed our perspective about life and has helped us cherish all the moments and live our lives to the fullest.

I also have the best in-laws a girl could ask for. They’re always so willing to help anyhow, anytime, anywhere. When I’m not feeling well it’s so comforting to know that I can always count on them to help with the children or whatever we may need.

And then, of course, there are my friends. They’ve been a huge blessing to me. Whether it’s helping carpool the children or gifting my family with a meal in a time of need, I’m one lucky girl to be surrounded by such a great community of people.

Building a strong community around me has been an essential part of my journey with relapsing MS. To me, each and every one of the people who have walked with me on this sometimes wild and crazy journey with relapsing MS are my everyday, real-life superheroes.

They’re superheroes that have saved my behind too many times to count, and have selflessly been willing to help me and come to my aid.

  • CARE PARTNER
  • community
  • FAMILY
  • friends
  • LIVING WITH RELAPSING MS
  • relationships
  • SUPPORT
  • tips



Related Posts

MY LIFE

Being Proactive and Living with RMS

By Rachel, Wife, Mother, Domestic Engineer, April 28, 2017

When I was first diagnosed with relapsing MS, I asked myself this: was I going to live with relapsing MS or actually LIVE with relapsing MS?

MY TEAM

Why Me?

By Chad, Husband, Father, Software Engineer, April 14, 2017

If you’re anything like me, one of the initial thoughts crossing your mind after hearing, “you have relapsing MS” is “why me?

0 Comments

Add a comment

All fields required




1000 characters remaining

By clicking the Submit button you are agreeing to our Terms of Use. All submissions must be approved by Sanofi Genzyme before they will be posted.

The information on this page is owned and controlled by Sanofi Genzyme. All submissions will be reviewed and must be approved by Sanofi Genzyme before being posted. Comments that do not directly relate to the topic, potentially violate US FDA regulations, are factually inaccurate or misleading, or are spam, inappropriate, defamatory or use profanity will not be posted.

Please keep your comments respectful and appropriate, and do not reference any product names or product information. We will not post comments that include drug names or descriptions. Please note that Sanofi Genzyme may choose not to post, or may remove, a comment for any reason at any time. Comments on the page from members of the public do not necessarily reflect the views of Sanofi Genzyme, and Sanofi Genzyme does not endorse any content added by other users.

We are required to record and handle the submitted comments in a specific manner to monitor the safety of our product. If you have experienced a side effect or have a complaint specific to a Sanofi Genzyme product, please contact your healthcare provider. In addition, we encourage you to report the event to us by calling Sanofi Genzyme at 800-745-4447, where someone is available to speak with you.

The information on this page is intended for U.S. residents only and is not meant to substitute for the advice provided by a medical professional. Always consult a physician if you have health concerns.

Blog Terms of Use

LEMTRADA Events

Attend a live event or watch one online to learn more about LEMTRADA.


More From this Blogger

  • 5 Lessons From the First 5 Days of Infusions

    February 14, 2017

    1. Get in the “zone”—GAME ON Maintaining a ...

  • “Momming” with Relapsing MS

    December 22, 2016

    Being slapped (maybe more like sucker-punched) with a relapsing MS diagnosis as a young new mother w ...

  • Time to Take Action Against My RMS

    December 21, 2016

    Another relapse. I remember the morning very clearly, although I couldn’t see very cl ...


Tags

Show Less
  • FAMILY
  • PATIENT
  • YEAR 1
  • DIAGNOSIS
  • THE DECISION
  • SUPPORT
  • TREATMENT
  • NURSE
  • CARE PARTNER
  • LIVING WITH RELAPSING MS
  • CLINICAL TRIALS
  • INFUSION PREP
  • SYMPTOMS
  • HOBBIES
  • MS ONE TO ONE
  • CHILDREN
  • NEUROLOGIST
  • EDUCATION
  • EDUCATION
  • DISABILITY PROGRESSION
  • HEALTHCARE PROVIDER
  • EXERCISE
  • TIPS
  • RELATIONSHIPS
  • SIDE EFFECTS
  • RELAPSE
  • RESOURCES
  • INFUSION
  • POST-INFUSION
  • MONITORING
  • HOPE
  • COMMUNITY
  • FRIENDS
  • YEAR 2
  • GOALS
  • CAREER
  • FINANCE
  • VOLUNTEER
  • EVENTS
  • HOPE
  • NUTRITION
  • HOLIDAYS
  • RESULTS
  • RELAPSING MS
  • DECISION-MAKING
  • COMMUNICATION
  • SELF-ADVOCACY
  • MAKING A SWITCH
  • DECISION