My Amazing Family: My Care Partners By Donnie, Father, Husband, Project Leader, Former Athlete • September 27, 2017
My two girls really can’t remember me before I had relapsing MS. I was diagnosed in 2000 when Brooklyn was 4 and Hannah was 2. When they were that young, things were pretty normal. My relapsing MS was in the early stages, so all they really knew was that Daddy had to give himself a shot. As they got older, they started to learn about relapsing MS and they could start to see the effects my disease was having on me.
One thing I’ll always remember is that when Brooklyn was in junior high school, she did a presentation on relapsing MS at a leadership conference. She was awesome. She covered all of the details about relapsing MS including all of the potential problems a person can suffer from.
My younger daughter Hannah had to write a paper this past year about the most inspirational person in her life. You guessed it—her dad. When I read the paper I was crying tears of joy. I was so proud of what she had written.
As you can see, they are both remarkable young women.
But here is the real story! As they have gotten older they have played a big role in my life with relapsing MS. When I was considering LEMTRADA, I discussed all of the details with my daughters.
My wife and I had received a lot of information about LEMTRADA from my healthcare provider. We discussed the details with Brooklyn and Hannah and they fully supported my decision. We all agreed that LEMTRADA was right for me, because there was a chance it could slow disability progression, and that was one of my treatment goals. My family had seen my disability progress over the years and they knew I had to make a change.
My wife took off work during my infusions. She drove me to the infusion center and stayed with me during treatment. Brooklyn and Hannah were busy with school, but they still pitched in when they could. They looked after things around the house and took care of anything that came up.
After my infusions, I took a few weeks off work because I had some fatigue. I knew what to expect, because my doctor told me about side effects that can happen after taking LEMTRADA, such as infusion reactions (like fatigue), infections and autoimmune problems. I spent the time off resting and taking advantage of the love that I was getting from my girls.
When it comes down to it, I’m sure many of us can agree that family is the strongest support system you can have. But they are by no means the only form of support. Who has been a good source of support in your life?
- LIVING WITH RELAPSING MS
By Donnie, Father, Husband, Project Leader, Former Athlete, November 7, 2017
On most Sundays in the late afternoon you can find me doing one of two things. I am either watching golf or NASCAR
Monthly Monitoring with LEMTRADA
By Donnie, Father, Husband, Project Leader, Former Athlete, June 12, 2017
No matter what relapsing MS treatment you choose, you’re making a commitment. And LEMTRADA is no different
Attend a live event or watch one online to learn more about LEMTRADA.
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