Creating MS Awareness By Rachel, Wife, Mother, Domestic Engineer • August 21, 2018
I first learned about MS Awareness Week right after I got diagnosed with relapsing MS in March 2005. It was literally the same week. OH THE IRONY. Funny—in a not so funny kind of way. Accepting that diagnosis was a tough pill for me to swallow. It certainly wasn’t something I had envisioned being a part of my life! But like it or not it was my new reality. It was the new reality for my family too. Relapsing MS was demanding our attention, and MS Awareness Week conveniently made it easier for me to get information I needed.
My knowledge about MS was limited. I had heard about celebrities that had it and I’d certainly heard the term multiple sclerosis many times, but I wasn’t really sure what it was or how it affected people. It’s crazy now to think how very naïve I was about this chronic condition that affects millions of people worldwide.
I was eager to learn more and connect with others living with relapsing MS. It’s like there’s an instant understanding. Our symptoms are on a wide spectrum and can be seen or unseen, but we are all in this together, and the majority of us have a passion for educating others and ourselves about this disease.
My family and I got involved in the MS community right away. Apart from attending the different programs at my neurologist’s office, one of the first things I did was call up the local chapter of the MS Society. They connected me with several resources, including putting me in contact with one of the support group leaders, Robin. We joined support groups together and began participating in events and walks that helped raise funds for the MS community and research. We are still friends to this very day.
One year a group of my friends surprised me by putting together their own team in my honor. It was so unexpected and I was deeply touched. That is such a good memory of mine from one of the darker parts of my relapsing MS journey. Since then I’ve made great strides to help my disease by finding a treatment option that works for me. I am incredibly grateful. I’ve made it one of my life missions to be an advocate, to help educate and create awareness by sharing my story, and make a positive impact.
No matter where you or a loved one is in the relapsing MS journey, it’s never too late to get involved. There are so many different opportunities to do so. It doesn’t matter if it’s wearing orange to show your support, volunteering at a walk, spending a little bit of time with a friend who has MS, or even signing up for a local informational event (check out the LEMTRADA events happening near you. You never know, maybe I’ll be there!). Maybe you even want to start your own team for an MS walk or bike ride. You can make a positive difference.
If you’re not sure where to start, I’d recommend either looking online with the National MS Society or MS One to One® . They are both fantastic resources for lots of information. Be sure to sign up for their mailing lists so that you are always up-to-date with upcoming events and programs.
So—what’s next? What will you do to help create MS awareness all year round?! I’d love to hear your ideas!
Monthly Monitoring: One Part of My To-Do List
By Rachel, Wife, Mother, Domestic Engineer, October 18, 2017
During my experience speaking at LEMTRADA events, I have noticed that the commitment of monitoring for 4 years
My Fellow Superheroes: My Care Team
By Rachel, Wife, Mother, Domestic Engineer, May 17, 2017
Hello, my name is Rachel and I am superhuman (I’ll title myself as Super Rachel) and I am indestructible, right?! NOPE—wrong answer
Attend a live event or watch one online to learn more about LEMTRADA.
More From this Blogger
5 Lessons From the First 5 Days of Infusions
February 14, 2017
1. Get in the “zone”—GAME ON Maintaining a ...
“Momming” with Relapsing MS
December 22, 2016
Being slapped (maybe more like sucker-punched) with a relapsing MS diagnosis as a young new mother w ...
Time to Take Action Against My RMS
December 21, 2016
Another relapse. I remember the morning very clearly, although I couldn’t see very cl ...