LEMTRADA is a prescription medicine used to treat adults with relapsing forms of multiple sclerosis (MS). Because of its risks, LEMTRADA is generally used in people who have tried 2 or more MS medicines that have not worked well enough. It is not known if LEMTRADA is safe and effective for use in children under 17 years of age.

Do not receive LEMTRADA if you are infected with human immunodeficiency virus (HIV).

View IMPORTANT SAFETY INFORMATION

Share, Send, or Save Share, Send, or Save

Being an MS Care Partner: The Power of Your Presence Care Partner By Care Partner • November 15, 2018

Jason with Kimberly. Jason is Kimberly's husband and RMS Care Partner.

Hi, I’m Jason. My wife Kimberly and I celebrated our fifteenth wedding anniversary earlier this year. Fifteen years together. Fifteen years to have and to hold, for better or for worse, for richer and for poorer. Fifteen years in sickness and in health. Fifteen years with relapsing MS.

Unlike many couples, we weren't surprised by Kimberly’s relapsing MS because she was diagnosed years before we met, as she has mentioned in her blog. We shared our vows fully aware that relapsing MS was a part of our journey. However, there are many days when that early knowledge provides little comfort.

Life as a relapsing MS Care Partner consists of both challenges and celebrations   not usually distributed in equal portions. I tell people that I don't have relapsing MS, but I live with it. And it's true. I don't feel all the pains and twinges of MS, but I ache every time she hurts.

There are many days that I wish I could snap my fingers and cure her. Not a week goes by where I don’t wish that I could find that elusive solution to eliminate her relapsing MS forever. Sadly, I know that a magic cure doesn’t exist.

It's easy to feel powerless in the daily fight against relapsing MS. I am not a doctor, so what can I do? The question often stumped me until I realized one very important thing I can do to help—be there for her.

I realize I may never have the wisdom or words to fix my wife's relapsing MS, but I can always be by her side in the fight. For example, there are nights when Kimberly climbs into bed exhausted from another day with relapsing MS. Often the best thing I can do is lie next to her, take her hand, and let her know that I am there with her.

Or those days when she was in the hospital, hooked up to medicine and monitors, and getting constant visits from nurses. One way I could help was to sleep on a pullout couch in her hospital room every night and let her know I was there for her.

Then there were those times when Kimberly visited her neurologist, afraid to hear that the news might not be good. I found the only thing I could do was to drive her to the office and wait with her patiently, until we were called into the neurologist’s office.

Fifteen years with relapsing MS has filled our lives with plenty of ups and downs. Kimberly takes on relapsing MS with incredible strength, but some days, it leaves her feeling like she doesn't have much left to give. Your partner, friend, or family member may have days like that too.

Those are the times when you, as a Care Partner, may never find the right words. But you don't have to. Often the best thing you can do is be there and let them know they do not fight alone. That's the power of your presence.

  • CARE PARTNER
  • FAMILY
  • LIVING WITH RELAPSING MS
  • SUPPORT



Related Posts

MY TEAM

My Top 10 Ways to Live with Relapsing Multiple Sclerosis

By Rachel, Wife, Mother, Domestic Engineer, October 17, 2018

I’ve learned that if I want to live a balanced life, it is especially important for me to respect and treat myself with care

MY TEAM

My Fellow Superheroes: My Care Team

By Rachel, Wife, Mother, Domestic Engineer, May 17, 2017

Hello, my name is Rachel and I am superhuman (I’ll title myself as Super Rachel) and I am indestructible, right?! NOPE—wrong answer

0 Comments

Add a comment

All fields required




1000 characters remaining

By clicking the Submit button you are agreeing to our Terms of Use. All submissions must be approved by Sanofi Genzyme before they will be posted.

The information on this page is owned and controlled by Sanofi Genzyme. All submissions will be reviewed and must be approved by Sanofi Genzyme before being posted. Comments that do not directly relate to the topic, potentially violate US FDA regulations, are factually inaccurate or misleading, or are spam, inappropriate, defamatory or use profanity will not be posted.

Please keep your comments respectful and appropriate, and do not reference any product names or product information. We will not post comments that include drug names or descriptions. Please note that Sanofi Genzyme may choose not to post, or may remove, a comment for any reason at any time. Comments on the page from members of the public do not necessarily reflect the views of Sanofi Genzyme, and Sanofi Genzyme does not endorse any content added by other users.

We are required to record and handle the submitted comments in a specific manner to monitor the safety of our product. If you have experienced a side effect or have a complaint specific to a Sanofi Genzyme product, please contact your healthcare provider. In addition, we encourage you to report the event to us by calling Sanofi Genzyme at 800-745-4447, where someone is available to speak with you.

The information on this page is intended for U.S. residents only and is not meant to substitute for the advice provided by a medical professional. Always consult a physician if you have health concerns.

Blog Terms of Use

LEMTRADA Events

Attend a live event or watch one online to learn more about LEMTRADA.


More From this Blogger

  • A Care Partner’s Role in the Treatment Decision

    November 27, 2018

    In order to talk about my role in my wife Rachel’s treatment decision, you’ll need to ha ...


Tags

Show Less
  • FAMILY
  • PATIENT
  • YEAR 1
  • DIAGNOSIS
  • THE DECISION
  • SUPPORT
  • TREATMENT
  • NURSE
  • CARE PARTNER
  • LIVING WITH RELAPSING MS
  • CLINICAL TRIALS
  • INFUSION PREP
  • SYMPTOMS
  • HOBBIES
  • MS ONE TO ONE
  • CHILDREN
  • NEUROLOGIST
  • EDUCATION
  • EDUCATION
  • DISABILITY PROGRESSION
  • HEALTHCARE PROVIDER
  • EXERCISE
  • TIPS
  • RELATIONSHIPS
  • SIDE EFFECTS
  • RELAPSE
  • RESOURCES
  • INFUSION
  • POST-INFUSION
  • MONITORING
  • HOPE
  • COMMUNITY
  • FRIENDS
  • YEAR 2
  • GOALS
  • CAREER
  • FINANCE
  • VOLUNTEER
  • EVENTS
  • HOPE
  • NUTRITION
  • HOLIDAYS
  • RESULTS
  • RELAPSING MS